CAPOX JOURNEY

Ah sending a hug Bella12 , though it sounds like OH is pleased with last minute reprieve!!!! I got through number 3. Usual rubbish side effects starting....... hope everyone is doing ok! Xx

Well done !! Proud of you ️

Yes it’s a double edged sword yes it delays treatment but mentally I think he needs a break. Judging by his reaction this will really help his MH. So I’ll take it ️

Bella12 it’s a weird mixture of feelings when it’s delayed. I was relieved and disappointed when it happened to me but I’ve had over a week of eating normally and having some energy.  It’s reminded me of what normal is and that I’ll get back there when chemo is over.  As you say, good for MH.

I don’t know if the hospital have said but keep an eye on his temperature and go to A&E if it raises above 38 degrees.  If his cell count is down it leaves him susceptible to sepsis.  

I hope he enjoys his week of freedom x

Thank you Lee_L good call. He’s up and tinkering in his garage already - his happy place ️

A break will raise his spirits a lot! Having said that , hopefully treatment will resume shortly as beating the crap out of cancer is a tough call  and demands determined ,persistent effort X 

Hi my fabulous forum friends ! (fff)
OH had his 3rd infusion today after being delayed for 1 week due to a low platelet result. Platelets are back to 142 from 99 so very happy with that. 
Question for anyone on Oxaliplatin.  When you have the infusion do you have the glucose solution before/during/after the chemo. In 3 infusions each one has been different with this 3rd one only having a small amount of glucose before then that was stopped whilst he had the OXY . Hubby says the tingling felt much more intense during the infusion this time and it was only the last 20 mins that they started the glucose again.  So is the more intense feeling due to it being his 3rd infusion or due to the reduced glucose drip. 
please let me know your experiences 

Thank You 

Bx

I honestly don't recall getting glucose at all. 

My tingling sensations got more intense with each infusion. Even when they reduced the dose, tingling got worse. 

Most of my problems were after the infusion, but I received my infusions through a central line or "chemo port". That process seems less common in the UK than it is in the US. But I suspect it is why I didn't experience as much site discomfort. However, cold sensitivity to touch was immediately present if I touched something cold or tried to drink something that wasn't room temp. 

Hi Bella! Well done to OH! I am pretty unobservant because I don't know! I did hear the nurses talking about what rate to run the glucose and I think it runs alongside the oxaliplatin? 

My infusion was run over a longer time but my arm has never been more sore! Still hurts now 8 days on. My cannula was more on the side of my wrist this time so maybe that didn't help. Hope OH is OK, I absolutely hate the infusion, am stuck in bed for days after! I caught sight of a drama the other day where a character was having chemo. Had to turn it off, immediately felt sick!

Hope everyone is doing ok xx

Oh Arial88  no he wasn’t looking forward to this one especially after having a week off !! Think that’s helped him knowing that it’s not only him - but I do feel they should have had the glucose drip going through at the same time. It just isn’t consistent which is worrying. 
Hes now on the sofa with hotties on his arm having a good old moan - bless him ️

Thank you  & hope your arm improves quickly 

x

Hi everyone we are now on day 4 of the 3rd cycle, Last day of anti sickness and steroids and 11 days to go of the capecitabine tablets 1800mg 2x per day.

OH’s arm is still really sore, the neuropathy has stuck around for much longer in the infusion arm and is now affecting his feet as well when it’s cold. (Where did that warm weather go to)  so heating is back on and hes upped the number of warm baths hes having each day to ease the symptoms. 
I know you shouldn’t Google but OH did and found that the glucose with oxaplaitin should reduce side effects so not having it this time has intensified them he feels. 
You really do feel at the mercy of the ‘experts’ and hope that they are doing everything right ! 

Hope you are all getting through your individual treatments well and are feeling a little more positive each day. 
As ever one day at a time ……. 

Bx