Mass found on colonoscopy

  • 32 replies
  • 130 subscribers
  • 2682 views

Hi all.  I am new to this and need support as to how i navigate this.  Yesterday I had a colonoscopy after having rectal bleeding for some months.  There was a clear mass low down in the colon.  Obviously for now that’s all I know.  How do I navigate this?  My anxiety is going through the roof.  Before having to do the prep for the colonoscopy I had no other symptoms.  After a sleepless night I have pains a cough bone pain and a scab up my nose that obviously I’ve self diagnosed as being related.  I feel quite overwhelmed with everything.  For content I lost my dad to pancreatic cancer just two years ago.  He’d had symptoms but every test came back negative.  Eventually he took himself to hospital  because he felt so unwell where they finally diagnosed him and died 8 days later.  I didn’t even get a proper conversation with a doctor.  They didn’t wait for me to arrive at the hospital before telling my dad.  I was told he had days / weeks left and turns out he only had days.  The enormity of it all has really affected me.  For reference he was in Ireland and not the U.K.  

  • Kids are the best medicine aren’t they?  It hard because my daughter understands and is truly amazing but this is still a lot for her little head.  Her school have been super supportive and we will all be happy when this op is done.  I’m feeling really positive still.  Yesterday had a cry but it was just me and the dog and quite frankly I feel better letting it out.  

    I treated myself to an iPad. We have several in the house but not one that’s mine.  I’m going to download every series I’ve never had time to watch.  Yes headphones plug in ones because the others fall out of my ears.  

    yep I’m going to order some lovely pjs.  I’ll take my summer ones into the hospital but I’ll get some warm ones for home.  

    Do you mind me asking has your chemo started now or are you still waiting and is that just belt and braces?  

    I know from your bio that you’ve been through this with family.  So you’re not bullet proof just amazing reaching out to help us.  Every message I get from you guys helps I can’t even explain.  They make me feel less lonely so thank you  

  • They certainly are the best medicine! Yes I made my sister bring in big headphones as mine kept falling out. 

    I’ve started chemo, I’m on my third round and will be having it for 6 months. It is mop up so to speak but after my operation the histology showed my tumour was a T4 and it had gone into my lymph nodes, blood vessels and nerves making me stage 3. I was really shocked as my scans hadn’t picked this up at all. Because of this it meant I’m very high risk of it spreading and that the cells may be loose in my body so to speak so hopefully the chemo will blast them before they can grow elsewhere. I wasn’t expecting that news and had gone by myself  to my follow up appointment where there broke the news. So for me it’s changed things statistically, my chances of being here in five years are reduced and I have a higher chance of it coming back so I just hope beyond hope I’ll be lucky and the chemo will do it’s job. Just such a rollercoaster. 

    when my dad and sister were diagnosed they were already at a later stage so their treatment was never to cure but mine is and for that I am grateful that I still have options though it makes me sad thinking about what they went through. 
    This group has been so helpful for me and I’m also in some Facebook groups which helps as I’ve found people who have had same diagnosis and they are doing so well xx