Hi all. I am new to this and need support as to how i navigate this. Yesterday I had a colonoscopy after having rectal bleeding for some months. There was a clear mass low down in the colon. Obviously for now that’s all I know. How do I navigate this? My anxiety is going through the roof. Before having to do the prep for the colonoscopy I had no other symptoms. After a sleepless night I have pains a cough bone pain and a scab up my nose that obviously I’ve self diagnosed as being related. I feel quite overwhelmed with everything. For content I lost my dad to pancreatic cancer just two years ago. He’d had symptoms but every test came back negative. Eventually he took himself to hospital because he felt so unwell where they finally diagnosed him and died 8 days later. I didn’t even get a proper conversation with a doctor. They didn’t wait for me to arrive at the hospital before telling my dad. I was told he had days / weeks left and turns out he only had days. The enormity of it all has really affected me. For reference he was in Ireland and not the U.K.
I was told anything at my CT scan even though I asked and had a bit of a strop! They said they weren’t qualified to say anything. Usually they will wait for your biopsy results which can take 3 weeks, put that together with your scan results, have an MDT and then you will be called in for an appointment where they will explain all their findings and plan of action. I think the whole process took about 4 weeks for me.
Thank you! I was kind of hoping that would be the case. I can bury my head this week then.
Haha!! Thank you for this info. Apparently my appointment was sent by letter but our postal service is not great so I just had a call yesterday and the lady said something about drinking a litre of water before and not eating but I can go to the loo. I’m so happy to get this scan then they can have a full picture of what’s going on and can tell me. This morning I woke up and thought this could be benign!! For the moment nobody can tell me any more so that’s what I’m going with today. Obviously I know it’s probably not but today I’m thinking of best case scenarios I read a wonderful message about someone’s mum on this forum who passed recently but lived with this for 15 years. All I could think was what an amazing woman she’s sadly gone but today she’s given me lots of hope. So I’m thinking about her today. ️
Hello. Just checking in to see how you are and if you’ve had your results back yet?
Hey there. Yes I had an appointment with a surgeon last week. So I have adenocarcinoma on the sigmoid Colon and I have an operation booked for the 12th December to remove it. The CT scan showed no spread but I have nodules in my breasts so being referred for this but I’m not concerned. So super happy that my cancer is classed as curable but I won’t know if I need further treatment until the new year.
im starting to get anxious about the operation but I keep telling myself that I’ve just got to turn up and I’m so grateful that it’s operable. X
Will be thinking of you on the 12th Scoutabout . It's easier said than done to not get anxious - have you seeen the Royal College of Anaesthetists pack called ' Fitter Better Sooner ? It contains some good advice on how best to prepare for the surgery, including getting plenty of exercise and practising deep breathing...
Preparing for surgery – Fitter Better Sooner | The Royal College of Anaesthetists
I’m glad you have some answers and a plan. My cancer was in my sigmoid colon too. And you are absolutely right all you have to do is turn up for the op and they’ll do the rest and look after you well. Will be thinking of you xx
Thank you so much for this. I never knew such a thing existed.
I was just reading your bio. Our journeys are similar. Thank you so much for checking back with me. Your and everyone’s answers to my questions have been so helpful. How have you been since your operation?
My 11 year old daughter was reading the booklet about the operation to me. It sounds awful when you read it but the surgeon said it’s very common and straightforward and it’s curable……so I’m not reading it again.
I’m making the most of my pre operation days.
Xx
I have an 11 year old daughter too! I was back home 5 days after my operation and other than being very tired and having to sleep on my back for a few weeks I was fine really. I could do light housework and would have short walks each day. I was very nervous before the op but I made sure I let everyone knew and they were so nice and reassuring.
Before I went into hospital I made sure I had an extra long phone charger. I treated myself to lots of lovely pjs and nighties, oh and headphones!
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