Hello a me update

Hi HazG 

I am sad to read you did not gain the desired effect from lonsurf. Particularly when it was harsh on you .

However you have had good shrinkage with Flofiri and I hope the side effects won’t be so harsh and it does the job for you once again .

Mum Is on the two week cycle . It is a bit curtailing as well you know but together your family and mine will find a way to keep working out life on treatment and keeping the good times as the focus .

take special care ,

Court x 

Hi HazG , that's rubbish going through lonsurf for it not to work, so sorry.  As you had good results with folfori it sounds like a good plan to rechallenge.  What are your biomarkers, are you able to add in any targeted treatments I.e. cetuximab or avastin?  

Also, are there any suitable trials?

Xx

Hi he did mention cetuximab Avastin I can't afford I've been trying to raise money for it but not enough.

I had great results with Cetuximab and know of a lot of people on it very long term keeping everything stable.  It killed my liver mets, complete clinical response.  Def push for it to be added.x

 Star74 can it be added anytime during treatment? Did it effect your skin ? 

Yes, they added it in to my regime after about 2 or 3 cycles.  I did have a skin reaction but they will give you creams to help and you should also get antibiotics.