Not sure I've made the right decision going on lonsurf tablets over the infusion I've been reading people having lots of problems side effects on them.
This is not something for you to handle on your own . You have every right to go back to your team and chat this through . Everyone needs time to reflect and consider the implications of a decision and want to chat through the clinical aspects with a consultant once again .
I would give them a phone and not take the weight of this on yourself.
Have you got a specialist nurse you can contact to chat things through? You have to be comfortable with your decision so if anything is amiss and keeping you awake at night I would def speak to someone, even just to put your mind at rest.x
I agree with the others. I keep forgetting that we are supposed to be able to say no to any treatment at any time! I wouldn’t have started with capox when I did as I felt well, and now hindsight is a wonderful thing. I’m going to try and stick with my current plan as I’ve done 2/4, then it’s scan time. If it hasn’t worked by stopping another spread, then I’ll probably take a break. My prognosis was a little worse than I thought, so quality of life is really important. Do contact your team and get some advice.:
Maybe im missing the point but why have you been recommended to adopt that particular Chemo regime? It's possible to guess but you deserve concrete facts.Your MDT notes should be available via an assigned Department contact point.By default the Nurse otherwise go to the Admin Head.
Once that question is answered it might proove easier to cope with the Action Plan devised for you. I hope so.
Hi I have no idea I had a scan which showed growth and another lesion in my liver, I've only been on 5fu for 4 months before that it was folfori which got me stable he then switched me too maintenance which clearly hasn't worked he said back on iv or tablets, felt like we were put under preasure to make a decision I went with tablets because I thought it woukd be better nit having to go in for chemo,but after sleeping on it or not and talking to my family I want to go.back on iv instead.plus lonsurf only gives 4/10 succes rate.
You sound as though you have more of an idea of how you want to go forward . Maybe you needed these few days to think it over as hard as that process is .
