Waiting for the first appointment

Hi Kell. I was diagnosed in 2016 and my timeline is below

22/7 colonoscopy 

3/8 CT scan

8/8 MRI scan

9/8 Saw surgical team to discuss treatment plan

12/8 saw radiology consultant 

16/8 saw oncologist

18/8 chemoradiotherapy pre-assessment

22/8 started Chemoradiotherapy 

28/11 surgery

Have you been allocated a colorectal support nurse that you could ring for an update!

Take care

Karen x

Hi Kell, 

I have found there are usually about 2 weeks between one specialist making the referral and getting the appointment. I've had my onco forgetting to actually make the referral he said he would do, delaying everything by 3 weeks, so now I just ring every department concerned until I get an answer and some action. I'm sure they're all sick of me but that's too bad 

Cecile x

Thank you Karen,

Wow you have been through a lot, hope you are well now.

Yeah my husband has been given a colorectal nurse that we can turn to. 

He was only diagnosed on Thursday but the way in which the doctor was talking it was urgent he got seen.

Maybe it was me panicking a little and not taking everything in??

I think we will be giving her a ring tomorrow just to put our minds at rest.

Thanks again and Take care

Kell xx

Hi Cecile,

It is a long time to wait isn't it when you have been given news like that?

My husband is getting stressed and he is normally quite calm. 

I am all over the place as I like to plan things ahead and obviously at the minute we can only take one day at a time.

We will be ringing tomorrow I think just to try and see where we are.

Thanks again Kell

I had a colonoscopy in May 2019, and it was obvious that it must be cancer. I saw an oncologist in mid June, roughly two weeks after I’d seen the consultant. Keeping everything crossed that your husband’s appointment comes through quickly. 

Hi Jools,

Thank you for getting in touch.

I think it is worse knowing you have been diagnosed you just want to start treatment.

How are you now?

Kell

I’m not one of the current success stories, but there are plenty of people that are, so focus on that. There really is no point in looking at worst case scenarios until you have no choice. I’m undergoing treatment, so we’re not out of options by a long shot. Take care.

Jools,

Hope all goes well with your treatment, lots of love being sent your way.

Thank you for your message.

Please keep in touch xx