Hows everyone doing?

Hi Amy, dexamethasone just keeps me awake, even when I'm absolutely exhausted! Don't hesitate to ask for sleeping pills if you are struggling, I used to take them for 3-5 nights after each infusion.

Cecile

My face is all out in major Rash and swollen lips. Must be the immunotherapy as I never had this 10 years ago and that’s only after one cycle xx 

Hi Strong lady

I have struggled with neuropathy for months - wish I'd been a little less 'brave' (aka daft) with oncologist as I should have said earlier how much neuropathy was impacting me. I could have had my dose reduced.

So don't follow in my footsteps on that one 

Hi Cecile:  I'm so glad I clicked through here this morning, I haven't slept for three nights and am going crazy with tiredness - now finished dexamethasone so hope tonight will be full of zzz zzz zzz of course that might result in an exploding stoma bag but at this point think I'd rather sleep in a bin bag and clean up the mess!!  Did you ask your GP for sleeping tablets for those 3 nights or would the cancer unit supply them?

Thank you lovely and have a good day

Julie x