Lonstar

  • 1 reply
  • 115 subscribers
  • 366 views
  1. Can anyone offer an success stories please husbands chemo not worked on folfox or Folfori due to start lonstar in the next week tia x 
  • Hi  

    Just wanted to say that the feedback I have heard on the forum is a subgroup of patients gain stability with it and for those patients it’s the reason Nice fund it .

    However others report problems with fatigue and other side effects .

    We did have someone who used to post and her husband had been on it for over a year and found it tolerable . 
    I guess it’s quite individual.

    Not sure if it’s Lonsurf ! 
    Take care ,

    Court 

    Helpline Number 0808 808 0000