How are you doing? Spuduknow

  • 5 replies
  • 114 subscribers
  • 548 views

Just wondering how you are getting on? The last time you posted you were still waiting on your consultant. I hope you’re okay, and have been busy getting on with your life. 

  • Hi Jools! Turns out my oncologist forgot to send the referral to the lung team so he did it on Tuesday and my case will be discussed at the next MDT meeting next Tuesday. According to the European guidelines on the management of patients with metastatic colorectal cancer resection of lung nodules should have been discussed at the first MDT meeting following diagnosis, before starting chemo; I asked the nurse why this wasn't done but she assured me that it was discussed and wasn't an option - I am a bit dubious though as it is not mentioned anywhere in my medical records... 

    Between kids and work I have been busy so it keeps my mind off it! I hope you are well and enjoy another long weekend xx

  • I can’t believe your oncologist forgot to send your referral! I thought all departments have protocols in place so that this doesn’t happen. I can’t imagine how you must feel, aside from let down. HFingers crosseding cancer is stressful enough, and having a secondary knocks your confidence in the system. I’m trying really hard not to go down that route, but they don’t make it easy do they? I hope you are ablFingers crossedto enjoy the long weekend. Having children it must be hard. I only have dogs and find that hard enough. Good luck next week. Let’s hope we both have something positive to post.Fingers crossed

  •   Just tagged spuduknow for you Jools x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thanks Kareno62. I can’t always remember how to send a direct message! Brain fog. 

  • No problem. If you click on the spudulike in bold on my post then that will take you to their profile page. If you then click on the green connect box it will send them a friend request and once they accept then you can message direct x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm