Chest pain capecitabine 999

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Hi Simon had pain over his shoulder last night woke with pain in chest clammy and down arm rang rapid repsonse told me to ring 999 took him to a different hospital ecg clear bloods and xray do you think this is a side effect not very nice was asked for oncology consultant Ive no idea who that is only seen her once this is our first cycle day 5. Do I ring CNS nurse tomorrow 

  • Hi Jkee. It’s good that you rang 999 and you definately need to speak to a member of his team. Do you have a 24 hour chemo help number? If not then maybe ring the hospital and see if you can get hold of someone as he may need to stop the tablets asap.

    Please keep us posted 

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi Karen062 rang the rapid response team but all she basically said she is not allowed to tell us to stop the tablet the oncologist need to no one at the hospital until Monday 4 tablets night and morning with iron blood thinner injection antibiotic anti sickness tonight nightmare.Hospital sent him home just local one ecg bloods xray ok x

  • You might like to speak to our helpline 0808 808 0000

    . I would definitely want to speak to a consultant . I know for sure even at weekends they are on call . If it was me I would phone back and ask the junior dr to contact the consultant and give advise .

    Capecitabine can cause issue for some people regarding their heart and he needs to know what to do and it needs to be actioned . Just my views . 
    Court 

    Helpline Number 0808 808 0000

  • Thank you Court the hospital said his heart was ok but he is here with pain in his chest phoned hospital only have the rapid response she thought muscle or joint paint side effect not convinced rang the help line who you said very helpful even she could get any numbers for our hospital on a sunday suggest ring back rapid response x

  • Why is everything a battle to get help paper work doctors hospital appointments now weekend help just wish someone would help

  • Is he currently having chest pain ? 

    Helpline Number 0808 808 0000

  • If he is I would try and get him to a and e ! The weekends are an absolute nightmare but I can absolutely assure you an oncologist is on call at the cancer hospital 24 hours a day . 
    Court 

    Helpline Number 0808 808 0000

  • Hi court it comes and goes like a spasm I think we will have to drive him over to our hospital 26 miles away the ambulance wouldnt go there this morning just to local hospital but the rapid response said if blood or anything showed anything bad they would admit him the rapid response was no help just said ring 999 ive done that i said just need a oncologist I r xxeally dont know what to do Simon does not want to sit in a and e for hours and hours may ring 111

  • I can totally understand the desire to avoid a and e but you are absolutely doing the right thing . It needs checked out and you do need some medical guidance . It’s their responsibility. 
    Court

    Helpline Number 0808 808 0000

  • Hi Jkee.

    Simon's oncology consultant name should be stated on the top of the "intended treatment plan" document issued to Simon and his GP just before chemo started.

    Chest pain from muscle spasms is a side effect that I have from my chemo treatment. It can be very painful and scary at first. So my sympathies are with Simon.

    However, if Simon's temperature, consciousness or pulse are out of sorts then A+E may well be best - regardless of the wait.