Oxaliplatin side effects

Former Member over 3 years ago

5 replies
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Hi all. I have just started the second cyle (of four) of Oxaliplatin and Capecetabine. Like everyone else I am suffering from the tingling fingertips. Last time this wore off by the by the end of week 1. This time it is much more intense and I am having to wear gloves to handle things even at room temperature on day 4. My question is this - is anyone further down this journey and did the effect wear off? I heve ready totally contradictory articles about the risk of this side effect being permanent?

Former Member over 3 years ago

*have read

Mel M over 3 years ago

Hi Wessex Wandere, I think it varies from person to person I had 4 rounds of CAPOX, finishing December 2022 and found that the tingling wore off after 3 days on each cycle . What is strange is that now I am suffering from periodic neuropathy now, mainly in my feet. I will be sitting down and I get a sensation like when you are walking over sand and it suddenly gives way. Just wearing extra socks and moisturising, both help. I have a colleague who still suffers 6 years after treatment finished but that is a rare case. Small price to pay to get rid of those rogue cells. Good luck with the rest of your treatment. May we all beat this disease xxx

Former Member over 3 years ago in reply to Mel M

Thanks Mel, thats helpful to know. Good luck on your journey. xx

Katz51 over 3 years ago

Hi I had Capox and had the tingling and throat spasms for the 2 weeks of treatment each cycle.however I was fine on the rest week.I have had no lasting problems apart from occasionally not being able to swipe on a tablet or phone due to altered fingerprints.

All the best

Kath

Former Member over 3 years ago in reply to Katz51

Thanks Kath, glad to hear its going well :-)