A New Journey Begins - Cetuximab ! Update .

So pleased it went well so far! 14 years, that helping me keep my hopes up!

Cecile

Thinking of your mum Court. She’s a wee trooper. 
Has she been on this before?

️xx

I hope she copes well with it. Her story gives us all hope. Karen 

So pleased that it has . I am Also still in touch with people who are further ahead of her and still doing well too ! 
Such a shame she stopped scanning just as it recurred . However I notice the research for long term management is still in the making . Happy she is pushing forward still despite it all . 

I need to read up on this but apparently there is some research on eating pomegranate seeds on Cetuximab. Something to do with the gut bacteria they encourage. Not had a chance to read up on it but still bought them anyway . 

Hope your own treatment plan is coming together .

Court 

Oh thank you Faloola . Never been on it before . It was not funded when she was first diagnosed and we pestered politicians to get funding for it way back .

She only knew she was suitable for it back in 2016 as they got better results from her lung resection .

She has just returned from a night away and managed well . Going to do her shopping soon and catch up but for now she is sound asleep ! 
Take care ,

Court 

So far so good Buzz K  I believe the side effects will be arriving in a few weeks but it let her get off to a good start . Next time definitely taking her iPad and phone charger . She was busy phoning her friends .

Hope you are doing ok .

Court 

Glad your Mum is keeping her pecker up despite this reoccurrence, quite remarkable after so long.

I has cetuximab and had great results, as soon as it was added to my regime the tumours shrunk by a third.

Wishing her all the best.xx

Hi Star74 

Thank you so much . She certainly is trying very hard as ever . Out most days with family .

She has added the  pomegranate seeds . Day 5 and the spots /rash have arrived so taken an antibiotic and some steroid cream . Very manageable so far but she is taking it as a single agent .

All we need is stability so we are hopeful as ever . 

How are you doing ? Planning another family holiday yet .

Court

I certainly found it more manageable than folforinox, just keep an eye on the skin it can get very sore, and make sure she stays out of the sun!  She's a trooper your Mum, praying she gets stability. 

I'm OK, just had my 3 monthly CT and MRI scan so anxiety has set in while I wait for results.  Funny how it takes you straight back to that dark place when I was first diagnosed!  

Funnily enough I had cheeky look for holidays in May!  We're just in the middle of fitting a new kitchen though so I have to choose my moment to suggest a holiday!!

Green light given for round two !

Had a wee chat with the lovely nurse . Turns out mum

should have been taking her antibiotics. Who knew , not me as she never told me and I definitely think a wee hearing assessment is on the cards for her !.

A manageable two weeks . Got on top of the rash and all things considered it was doable .

Best foot forward to the next cycle .

Court 

ps Star74  I saw you mention in an old post about taking the antibiotics and thought mmmm think we have messed up .

. But made me ask more about it so that was a positive .