Update on Mrs. S

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Well, I am feeling both relieved & very fortunate with a small sprinkle of apprehension, 

My surgeon wasn't at my OPA yesterday but another surgeon did cover his clinic and went through my results and options.

Me & hubby were so relieved that our manifesting of "its only a tumour" was picked up by the universe and brought into fruition. So far, it is only a tumour, T3 & no spread to liver & lungs. 

What followed yesterday, and why I feel fortunate as I know some people have their plans but have not started them as of yet, was a string of visits to various people getting me ready for an anterior resection next Wednesday (18th Jan). 

I left the hospital after 4 hours with a big bag of booklets, instructions, charts, exercises, meds, bowel prep etc etc...... I just need to make an excel spreadsheet so I know what I'm doing & when. Slowly digesting it all in small sections in between working from home.

I came home very impressed at the care & support I was given and the sudden speed of moving on after the 5 week wait since diagnoses at colonoscopy & disappointment at not being discussed at MDT before Christmas. I think I did my wait & am well & truly on the move. I do feel a little nervy about the surgery, the risks they have to tell you about are a bit of a shocker hearing them all at once. However, my mantra for the coming week is "I woke up from surgery with no complications"

Thank you to everyone who has shared their stories and offered support - the support here & facts from MacMillan really prepared me for yesterday & I'm sure will continue to do so.

Now to actually start packing a bag!

B

  • Good luck to you and big hugs. 

    Cath

  • Great to hear that you’ve got a date - make sure you pack an extra long phone charger! x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Best of luck with the surgery!

    Cecile x

    PS: I had surgery 3 years ago and I did wake up with no complications and my bowels work much better than they ever did!

  • That's wonderful news for you Yes, I well remember the mound of letters, instructions, leaflets & booklets prior to my Op. I read through as much as I could do, but in the end, I just concentrated on going in for the Op - 4 weeks after diagnosis of Bowel Cancer.

    & Yes, I was fortunate enough to wake up from the GA, with no complications, having had a left Hemicolectomy.

    I was in hospital for 3 days, & was sitting in a chair, then slowly walking the next day. Once home, I had a friend that shopped for me for a week, thereafter, I started shopping, walking again.

    The hospital stay was very boring....but I read a few books, did Codeword Puzzles, & was ravenous for food. I loved the trolleys coming round with chocolate!

    My hospital was very noisy at night, & the lights were always on at the nurses station. I took the night masks & the ear plugs, but I was always aware of the noise. It was great to get home & sleep in my own bed.

    Wishing you all the best.

    Marianne xx

  • Good luck Mrs S 

    I was also shocked when my surgeon read out all the possible risks, but they are legally obligated to tell you . I love your mantra , "I woke up from surgery with no complications" I am hoping this is the case. I was worried about my surgery as I was fortunate to reach 60 with having no medical issues before this. There are many of us who have been on this journey you are travelling on and understand what you are facing. My motto would be to the tumour, better out than in. Will have everything crossed for the 18th xx

  • Good luck to you! I’m just waiting on my op date, I have my bag of antibiotics and prep. I had the scary meeting with my surgeon which sent me into a tailspin with all the potential issues. I wish u well on your journey x 

  • First big step in your path to full recovery .

    Love the spreadsheet ! Now I think you just might be in management!Grinning.

    Wishing you every success .

    Court 

    Helpline Number 0808 808 0000

  • Hi Mrs S

    Good luck on the Surgery. Hopefully you will get a morphine dispenser. Marvellous gizmo. Press it every few minutes to stay in la la land.

    I packed noise cancelling over ear headphones to listen to books etc eye mask and sunglasses to keep the latter in place. You have to be on your back anyway...well pretty much...The objective is to cocoon.

    Food is execrable but does not matter as you wont eat anyway. Bring stuff like ginger cordials that may be diluted as you need to stay hydrated. 2 liters a day plus as an objective.

    Hope that helps

  • Good Luck 

    Pack a iPad or similar with a long charging cable. Great for reading or watching some downloads 

    Ann
     ‍Art

  • Little update: 

    Tah Dah! I'm out the other side!

    What a wonderful team in the theatre on Wednesday, totally put me at ease, went to sleep at 9.30 & was wheeled on the ward at 16.30. 

    Slight complication in that my bowel had adhesions & was connected to my pancreas & more. Surgeon had to disconnect that before he could do the planned high anterior resection. 

    During the night my BP & heart rate was very low so they hooked me up & kept me well monitored. I had been giving my tummy Reiki whilst I was awake so maybe I went into a deep healing state as I managed to get out of bed in the morning & was dressed & walking about without the catheter & drain. Been resting well in between & following the enhanced recovery plan. 

    The nurses & assistants have been wonderful, keeping me well medicated & comfortable. I'm out the other side, the tumour has gone. Now we wait for results which I actually feel ok about, time to start recovery & focus on that for now.

    Great news is I'm going home this evening!