Updates on Jay

Thanks Court! I will do. Been so many `peaks and troughs` the last few days. I just hope this will fix whatever is going on and he won't see a hospital again for some time to come. 

xx

Went up to the hospital to see Jay today. Everything going in the right direction. His infection is beginning to clear blood pressure, temperature and heart rate are all back to normal too. If his improvement continues, he will be moved up to a day ward later in the week. The doctor told him just how ill he was and how bad the kidney infection was and we more or less almost lost him and if I hadn't phoned the cancer nurse and she arranged the ambulance for him when she did, that is what maybe would have happened. He was determined he wasn't going back into hospital again but I just wasn't listening to him and now so glad I didn't so the doctor said to Jay to tell me `well done me` for getting the ambulance so quick. So hopefully-again! this is him on the road to getting home again. The nurses had him sitting up on a chair today for a little while he said and they'll do it again tomorrow and then start to get his walking going again when he was admitted to resuss on Wednesday they told him too that his blood pressure was practically nonexistent so he's come a long way since Wednesday. 

Vicky x

So, Everything going in the right direction for Jay. His infection is still lingering slightly so they want this cleared completely before they even think of letting him home. His numbers are all looking good they're saying kidneys working well again and the infection was in his blood too. Still waiting to get out of High Dependency and into a ward or single room. Beds like gold dust of course. Someone more or less waiting to get his bed and he's waiting to get someone else's in one of the upper floors. They're hoping to get physiotherapy working with him too in regards to getting his mobility back so that's good too.

xx

Back at the hospital today. Jay doing well. Talking about reducing his fluids to see how he manages without them. Any problems they'll put him back on them. William took me up today as he's not back on shift until Friday. Jay just looking a bit tired but to be expected. The doctors are happy with his numbers still. His weight is acceptable they said too for all he has been through. Still can't get him into a regular ward or room but trying their best. Still trying to find the source of the infections too been taking more bloods from him and he says hopefully they'll find out sometime today. Onwards and upwards hopefully. 

xx

That’s good to hear that the wonderful HD unit is working it’s magic once again and this time for Jay !

Hope he keeps pressing on in a good direction .

Beds seems blocked at the moment. Hope it eases soon .

Court 

Yeah! He's still doing well Court. He looked well yesterday- even sitting up in bed! Everything else seem to be going well kidneys back working as normal bloods and everything else ok it's just trying to find the source of the infection which is apparently still hanging about but not to the extent it was. Once they find it they can prescribe proper treatment to get rid of the bug completely. He phoned this morning and said he slept right through the night and got woken by the nurses coming in to do paperwork. They've been waking him early mornings apparently to take bloods. Emailed his oncologist's secretary this morning to let her know he's in the Queen Elizabeth but assuming he has already been notified he's there. He was due an appointment with him a week tomorrow, but the oncologist has decided to defer it for another month because his secretary says he likes to allow for discharge and recovery time before he sees patients at follow up appointments because don't know exactly when he will be home. Hopefully he'll get up to a ward or room soon. The wee woman in the cubicle next to Jay got moved to a ward yesterday and she had been in HD just a few days before Jay. 

Vicky xx

So Jay phoned- again!  Doctors are delighted with his progress. Said that he will probably get discharged straight from High Dependency other than trying to scramble for beds in a ward which means he may stay there for another couple of days before they let him go. He says that they are going to take him off the antibiotics he has been getting through a drip just now and see how he goes without them. 

Vicky xx

That’s brilliant news!!.. all sounding very positive!

Hope you are looking after yourself too Patty , important to recharge your own batteries

Hi SG!

Good to hear from you!  Yes, its great news!  The doctors are delighted with his progress. What a difference a week makes! His numbers are all good! The infection is receding, and the physio was in today and had him up and walking a short distance and she said that was brilliant for his first attempt. They're looking to hopefully let him home sometime next week if his progress continues. They said no point in trying to get him into a ward if he's not going to be there much longer try as they might, the beds in regular wards or single rooms are just not there. Yes I'm having a good `recharge` SG I'll need it for when he comes home to help him change bags etc. Take Care. 

Vicky x

And he's home- again!!  Jay got home today. The doctors said there was no reason why he couldn't go home. Everything is fine or as the doctor said his numbers are all better than normal. At first they said Monday or Tuesday next week but then another doctor came in think it was the surgeon who did his nephrostomy and said he could go today. So he's home. On his discharge notice is says urosepsis so technically the infection was sepsis so lucky lucky man we got him in when we did because that IS serious. He will be followed up with the district nurses coming in on Monday and I was `taught` how to change the nephrostomy bags today. He has been taken off his diabetic medication for now because his blood sugars were stable during his stay in hospital but this will be followed up in the next couple of weeks he was told and they will decide then if he needs to go back on it again. I need to phone physiotherapy on Monday to let them know he is home. He was supposed to have an outpatient appointment today at the hospital just down the road from us for day clinic but obviously it had to be cancelled because he was already in hospital. He got some physio yesterday and we were told today that this will continue at the day clinic. It will be trial and error for a little while until we get into a routine as to how to change bags etc but once we get into the way of it hopefully it will be plain sailing so hopefully this will be his last `hospital jaunt` for a long time. He's back home now though and that's the main thing and that's what he wanted. 

Vicky x