Updates on Jay

Just back from the Beatson and Jay is looking really well. Such a big improvement since he was admitted on Thursday. He looks as though he has filled out a bit his arms look as though they have a bit more `meat` on them since I saw him last before he went in his arms looked really `scrawny` and horrible with lots of dry and loose skin. The skin on his arms still looks a bit loose but not as bad as they were you could just about see the bones through his skin, so I don't know what that dehydration and infection did to him. His feet look a bit `chunkier` as well they too were looking really `boney`. He is eating good too so that along with the fluids must be working I just hope he can keep up with the eating when he gets home. They keep telling him Wednesday he'll be home but still don't know but he should know for definite tomorrow the doctor is happy his kidneys are going in the right direction and mending themselves again not just yet but getting there and I'm guessing they want them at an acceptable level before he gets to go home. His shoulders are still sunken in a bit but I don't know if mild exercises would work for that. He can dress himself again but the only thing is the way they have positioned the flex for his drip makes it a bit of a faff to get his T shirts on and off and when he needs to go to the toilet the drip has to go with him too but these are just small incidentals and he's doing ok by the looks of things which is the main thing and I feel a bit better now for seeing him today. 

Vickyx

It’s amazing what a few bags of fluids do ! Dehydration is so exhausting .

So pleased to hear he is doing well . Not be long now and he will be home .

Court 

I know Court. He looks really like his `old self` again and long may it continue. He said they have been monitoring his blood sugar and it's `spot on` and that is without his diabetes medication because they apparently stopped that for now too so don't know if there may be something in that that maybe the diabetes meds have done something overuse or something??

Vicky 

So had Jay on the phone today to say that no doctors have been near to tell him if he is coming home tomorrow. I was so positive yesterday when I saw him and how well he looks but now I am worrying there is something wrong that no one has been near, and they want to keep him for longer. He's been taken off his drip and he said he is up and all washed and just waiting for someone to come round and give the word, but no one has been near this is starting to frustrate him again a little bit because they said he `may` get home on Wednesday. They have taken him off his drip so don't know if that is a good sign or not. He is so bored just sitting there doing nothing but at the end of the day I suppose if he wasn't supposed to be there, he wouldn't be.

Vicky xx

Im sure they have his best interests at heart.days do seem long in hospital,especially when you are feeling better and would prefer to be at home .lots of books to read and puzzles to do, help to pass the time.

All the best

• Kath

Thanks Katz!

I am trying to stay as positive as I can for him but there I'm overthinking again. The way he said the doctor came in to see him yesterday he said he was so fully of positivity that he will get home Wednesday and today he is in limbo again. He has his kindle in with him so can read some books I was up yesterday and took him up some newspapers. It's not a place you can get to that is right on your doorstep and costs a fortune in taxis to get to. My son ran me up yesterday, but I had to get a taxi home as he had to go and pick up his partner from work. I have my sister staying with me just now but really, I'd be as well being on my own for all the support she is giving me. She is just happy to sit on her backside all day and watching her just drags me right down. As long as she is getting her meals cooked for her and able to read newspapers and lie in bed until 11 in the morning, she's quite happy and she's not a young thing she's 71 years old. I came home from the hospital yesterday and she never even asked how Jay was more interested in me making her dinner. She has her uses though and washes up the dishes- after me having to ask her of course and she takes the dog out for me as well that's about all. She has mental health and learning difficulties as I've said here before, and she began creating a little bit last night again this is her thinking though that she's not getting attention and I need to focus on Jay just now and have told her this but I just don't think it registers or it does but she just won't accept it. Sorry for the rant. I'm just feeling down again. Hopefully Jay will be home before the weekend at least. 

Vicky x

It’s a Bank Holiday in Scotland so staffing will be lower.  It might be that is what is delaying his discharge?  
It affects all aspects of discharge including pharmacy which might be required if he has drugs to take home.

Hope he gets home soon!

Thanks Jaqui!

Never thought of that. Thought everything in Scotland was more or less back to normal. They have put him back on a drip so don't know if that is a good sign. He is totally browned off and says if someone at least came by and said well you're not getting home tomorrow he would accept that but said the wee nurse just came in and hooked him back up on a drip and gave him an injection in his stomach (to stop blood clots apparently). So i'm climbing the walls and so is he. I can't even visit because the hospital is away the other side of the city, and I don't drive so it's a fortune to get to. We have a hospital only minutes from where we live and he goes there to get his chemo so it would just be a case of jumping a bus or a couple of quid in a taxi to get there but they don't obviously have the facilities to deal with what he needs done. Tried phoning the ward desk but phone just rings out and then cuts off. Just so frustrating.

Hi PattyK 

It is a bank holiday for NHS staff today . Skeleton staff with mainly junior doctors covering and a few on call consultants . Tomorrow is back to a full compliment of staff . That does not mean he won’t be discharged come tomorrows ward round especially with his fluids completed .

Court 

He's back on a drip again court. Don't know if that's a good sign or not. Well, there you go I never knew that it was a bank holiday for NHS staff- so glad you and Jaquiw are here to keep me right Court. He is totally browned off and just wants home. Trying my best to stay positive for him but when I hear the despair in his voice it drags me down as well. He said the wee nurse came in and put him back on a drip and gave him an injection in his stomach he says he gets every night to stop blood clots. I remember he had to do this for 3 weeks after coming out of hospital last year for that same purpose. Ah well! just need to go with flow as they say. 

Vicky xx