I have been told I am KRAS g12 v folfori chemo has stopped working only option left is longsurf, I asked about avastin but dr said it only gives you another 6 weeks.
just got home and feeling like my head in a hurricane
anyone got positive outcomes with longsurf or experiences with avastin
just praying a trial comes available soon
budd
Hi Bud
Have you only been recently informed about the KRAS issue? I'm in the same boat albeit a different variant and practically threw in the towel there and then when I got an s4 diagnosis.
Lonsurf is available through all units of the US Medicaid system. Trial results show it is effective for some and not others....the usual mixed result.
I hope you draw that positive outcome. Definitely worth a shot.
With a bit more analysis
Sorry to hear that Bud 18.
I have heard the same as Anthony there is a sub group of patients who achieve stability on it , some others don’t . The way I see it they definitely would not find it here if Nice were not convinced it achieved something for some people .
How are you holding up ? Been a difficult time here . I lost my dad and mum has been very sick . Also got a recurrence but that’s not causing any issues . Saying that mum is gaining strength .
Take care ,
Court
Helpline Number 0808 808 0000
Have you linked in with Bowel cancer U.K. ‘s Facebook group .? They have all this sort of information as it’s a stage 4 group .
It is tricky as it changes from different health authorities. However it’s a generic treatment so our helpline staff might be able to assist you on getting more information on how to part fund treatment.
0808 808 0000.
Worth a try !
Court
Helpline Number 0808 808 0000
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