Hi all , 1yr of immunatheropy nearly done, 1 to go and I'm finally admitting to hiding my wobbles . I'm tired of smiling and bouncing with positivity , it sounds weak I guess but I wish I could just find some where to scream in frustration at this illness that doesn't give you a copy of it's master plan . I've done such a good job of being strong and I believe now it was a mistake I should have admitted my fear . Today is a wobble, tomor I'll be smiling and joking again . If you're new on this journey ,talk and share don't bluff . Talking is not a sign of weakness talking shows strength . Big hugs to you all
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You're doing an amazing job supporting your husband , being strong for both of you must be draining . Folks here have talked about the counselling on offer perhaps you could try that , giving yourself space to let your feelings out . Take care of yourself too x
I admit I do feel invisible sometimes . People tell me about their bad back , flu ect and I try to help where I can but I've done such a good job no one asks me how I'm feeling then I become angry at this beast that sits in there quietly scaring me and changing my ability to do things I used to do . I'll see how journalling helps ,maybe you could try that too ?
Thank you I'll look into it tho I've had counseling for other things and although it did help.the deep digging was really difficult . You're right about the looking ok , apart from the sickness and fatigue I appear fine , this is a positive in most ways but seems to help folks believe you're doing fine . Take care of yourself xx
After another night of not sleeping I called the Bupa counselling number . A lovely lady spent time going thro questions regarding how I feel ect and then told me I'm approved for their sessions . Within 48hrs a councilor called and arranged my first app for Tuesday . I'm so glad I took that step so if your reluctant 'like me ' please think about it and call them and give your mind some T.L.C
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