Tired of smiling

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Hi all , 1yr of immunatheropy nearly done, 1 to go  and I'm finally admitting to hiding my wobbles . I'm  tired  of smiling and bouncing with positivity , it sounds weak I guess but I wish I could just find some where to scream in frustration at  this illness that doesn't give you a copy of it's master plan . I've done such a good job of being strong and I believe now it was a mistake I should have admitted my  fear . Today is a wobble, tomor I'll be smiling and joking again . If you're new on this journey ,talk and share don't bluff . Talking is not a sign of weakness  talking shows strength . Big hugs to you all 

 and 

  • Ok where will I find it ?lol 

    xx

    Cath

  • You're doing an amazing job supporting your husband , being strong for both of you must be draining . Folks here have talked about the counselling  on offer perhaps you could try that , giving yourself space to let your feelings out . Take care of yourself too x

  • I admit I do feel invisible sometimes . People tell me about their bad back , flu ect and I try to help where I can but I've done such a good job no one asks me how I'm feeling then I become angry at this beast that sits in there quietly scaring me and changing my ability to do things I used  to do . I'll see how journalling helps ,maybe you could try that too ? 

  • Thank you I'll look into it tho I've had counseling for other things and although it did help.the deep digging was really difficult . You're right about the looking ok , apart from the sickness and fatigue I appear fine , this is a positive in most ways but seems to help folks believe you're doing fine . Take care of yourself xx

  • After another night of not sleeping I called the Bupa counselling number . A lovely lady spent time going thro questions regarding how I feel ect and then told me I'm approved for their sessions . Within 48hrs a councilor called and arranged my first app for Tuesday . I'm so glad I took that step so if your reluctant 'like me ' please think about it and call them and give your mind some T.L.C 

  • Hi Africa

    My husband is hoping to start these counselling sessions and i really do hope they do him the power of good. I don't know if I can join in on them or if I need to apply separately. Good luck with it.

    Vicky

  • Great to hear that ! 

    Will be thinking of you ,

    Court 

    Helpline Number 0808 808 0000

  • Will keep my fingers crossed that you can Vicky  . You're both sharing a difficult journey and I can't imagine the pressures in  your path as a spouse . Sending virtual hugs and I hope both you and your husband benefit xx

  • Thank you Court   x