Bowel blockage and kidney function help and advice

Hi Laura

Im so sorry that your Mum has had so much to deal with it seems unfair that her retirement years have been health conditions one after another. I hope that she finds a treatment to make her comfortable as a bowel blockage is awful. Maybe after more research pros and cons she might rethink her decision if the treatment is doable and results positive. 
Someone with more knowledge will be along soon 
Im sending you a hug 

Hi LozB87

I can totally understand the situation you find yourself in . We hold on as tightly as we can as we adore them but we also balance that up with their wishes. It’s not easy to achieve at times .

I was wondering if your mum heard a bit more about the Nephrostomy bag from other people who had one if it would give her more insight . I am sure the bladder or kidney group would be happy to chat to her .

Completely different thing but my mum recently came home from hospital with a catheter bag . Not sure when they plan to remove it but she has actually managed it’s maintenance quite well . We still take her out .

My mum did two years on Cap tablets with oxi infusions and she did ok once her team got the dose just right for her . My dad just passed and at the funeral as we were looking at a video of their life together it struck me that most of our family holidays around Europe happened after mum endured so much treatment and mainly in their 70 s . I was so grateful she endured it .

Its not an easy time for you all and sometimes they need space and time to weigh up their own options .

Thinking of you all .

Court 

1. Thank you Artsie Ann. I hope so too… hardest time ever. I hope you’re keeping well too xxx

Hi court, thank you for your reply. I will post in the bladder group as you recommended- thank you for that suggestion. I’m finding there is such little support for appendix cancers, especially goblet cell. 
mum do very sorry to hear of your Dads passing, I too of what is already I imagine a very difficult time with your Mum. Sending you love too. 

Meeting with her consultant at the Christie this afternoon. She’s very fed up on the ward today. I just hope he give her some light and positivity and hope of course! Xxxx

How did the meeting go ?

Being in hospital is so tough . Send her our love .

Court 

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/general/239197/appendix-cancer---goblet-cell-adenocarcinoma

Just linking in this thread as some people use the forum mentioned further down the thread that you might find helpful .

Court 

Hi Court thank you so much for messaging me to check how it went. 3am and lay here wide awake, it’s been a tough day. 

Mum has been told that she can try the cap tablets, but consultant isn’t convinced it’ll do much good at this stage (20-30%) and could possibly (not definitely) make her poorly in the remainder of her life. It’s her decision of course. However I’m pretty sure I’ve read a lot of success stories of taking this medication, so I have reached out on the Facebook group too. He says she’s not fit enough for intravenous chemo, he isn’t ruling cap tablets out but has said he’s not sure it’s worth it now…. We’re all in a mess today. Feel numb…

I want her to give it a go but obviously don’t want her to be very poorly in her final weeks/months, whatever we have left, if it doesnt work. I’m desperate. I’m considering a second opinion from perhaps Basingstoke? Or should I be satisfied with the Christie and that they are the best in this area.. no idea. It just feels so unfair that she’s never had chance to even battle this cancer. She’s never even had treatment for it because she was having treatment for the ovarian, 

I hope you’re doing ok too Court. I know you have a lot on. Laura xxx

Hi ,

The lonely nights are just the worst when your head goes into overdrive. 

It’s a lot to process . I am fully anticipating mum won’t be having intravenous chemo too .  She definitely does not want Oxaliplatin that’s for sure but her approach is if they offer her cap tablets she would like to try and if it’s too much she can stop them . She won’t persevere for months  if it’s bad she would take it on a day to day bases . Her reasoning is she also wants to think about preventing symptoms from developing. But mum has been on this for two years before so has some insight .

She is sensible enough to know when to draw the line . However it’s jumping the gun as she has not had a chat yet just what’s going through her mind . Think one of the other drs mentioned it . 

It’s a tough decision and very individual. Remember our helpline staff are happy to chat it through with you or her on 0808 808 0000

I am her if you need to offload . I totally get it . 
Right now I just feel tired ! So tired .

Take care ,

Court 

hi court, I wrote you a giant reply this morning but for some reason it’s not showing here! Is there a direct or private message facility on this site? Must admit I don’t find it very easy to navigate and Sometimes my responses aren’t showing. 

I hope you’ve had a good weekend. Mums exhausted and we’re struggling with the food situation. No idea what we can do. We are going to go ahead with a second opinion.. I feel we’ve nothing to lose! 

It’s so hard not to jump the gun like you’ve said your mum does. I do the exact same I find it particularly hard not to obsess about the ‘what ifs’. She is clearly a very strong lady, as is my Mum. I hope she is able to remain as positive as can be until her next appt. Xxx