Stage 4 cancer

I’m in the same situation stage 4 recurrent bowel cancer. Spread to my sacrum, both lungs numerous nodules, also lymph nodes in abdomen. I was diagnosed approx September. Was only given 5 days radiotherapy for hip pain. Have not been offered any more treatment and I asked did I have weeks months and was told hopefully years so I never pressed any further. 

Aw really sorry to hear that cath, it’s so sad knowing so many people are going through the same pain as us as a family at the moment. 

My dad hasn’t been offered any Radiotherapy which I thought would also be an option. 

Hi,

Yo be fair the oncologist said to me as you’ve no symptoms I’m not going to offer you treatment. 
I said well that’s incorrect I have pain in my hip and my GP has me on painkillers as she thought it was arthritis after x rays showed that apparently. 
Then he offered me radiotherapy for  5 days . My next appointment with him is on the 22nd. 

I know what you mean as it’s affecting my daughter who is 37 and we are so close and do everything  together. My son who is 43 hides his feelings he doesn’t want to talk about it. 

Hope you don’t mind me asking did your dads oncologist just offer up a prognosis or did your dad ask?. 

Oh never? Im Quite surprised they wouldn’t have given you the treatment, but this is all New to us. 

My dad asked for prognosis, I wish he hadn’t as both my parents are now finding it hard to see past the two year mark and I feel the fight hasn’t even started yet. 

Sending my best wishes to you and your family 

Hi,

I know it’s difficult all round. I had bowel cancer 10 years ago and we thought it was cured. But it’s back with a vengeance. I try not to think ti far ahead. I just take it one day at a time. They told me they didn’t want to start treatment to early . 

We just had an appointment with the oncologist today and we thought my husband's CAPOX treatment (Capecitabine and Oxaliplatin) was working but how wrong were we. He was on maximum dose and 2 weeks ago he became really ill and today the oncologist told us that his recent CT scan has shown that his cancer has got worse and spread to his pelvis. His kidney function has declined slightly so they are not keen to start him on any new treatment at the moment because he wouldn't be able to tolerate it and his legs have swollen slightly due to fluid retention, so they have stopped his next chemo cycle for now and sent him away with water tablets to try to get rid of the fluid and then see him again in 2 weeks' time when hopefully they will be able to put another plan in action. 

Hi,

I’m sorry to hear that. That’s where mine has spread to my pelvis well sacrum to be precise but as you know I’m not on any treatment plan. 

That's awful Faloola! You're a lot worse than I am. At least they are hopefully going to consider new treatment with Jay. Just so hard to accept and at the moment I am numb and in shock. The thought that I may be closer to losing him now after tolerating his treatment so well is unbearable.

It’s terrible and I feel for you and Jay. Just keep the fight one day at a time. That’s what I do. I have another oncologist appointment 22nd will see how that goes. I’m on tramadol for the pain in my hip. 
When was Jay diagnose with stage 4 and when did treatment start for him?

There hasn't really been anything said about the staging Cath. All the oncologist said was it has got worse and is in his pelvis. He said a lot of things but after he said it has spread I more or less `zoned out` and couldn't take in what he was saying really. He's got this course of water tablets to take and then we see the oncologist again in 2 weeks hopefully by that time we will have got our head around what is happening, and Jay will be a bit better for them to hopefully try to get another treatment plan in place. Take Care.

Vicky xx