Tumour removed July 14th 2022, CAPOX chemo started September 21st 2022 why all of a sudden can I not stop thinking about the cancer returning and coming back on my liver… this is literally all im thinking about, I’m not even 2 weeks in to my 6 months of chemo yet…. I know we get CT scanned every year but with liver cancer do you actually get any symptoms, are there signs I should look out for… I’m defo going to see if I can speak to someone about these thoughts, I see my oncologist October 12th hopefully she will be able to suggest something.
I am sorry about this post, I just had to tell someone how I feel
Thanks again
VJS
Yeah!
I think that would be an idea. You never ever seem to get shown your scans etc (like they do on the TV ads for Cancer Research) you sometimes just have to take their word for it how you are progressing because after all they are supposed to be the specialists. I don't know if you can request these or not.
Vicky
Hi,
So do you mean When you say you weren’t given the full picture your situation was worse than what they were telling you and therefore that May be why he’s not offering me any treatment!
Thats the part I don’t get as he kept saying you’ve no Symptoms.
Cath
I’ve been shown my scan images at appointments-I was asked if I wanted to see them, and on 2 occasions I said yes.
Sarah xx
I was offered once to see what damage my pulmonary embolism had done and once to compare the difference in my tumour from start of treatment to when treatment ended. I’m sure I’d have been shown others if I’d asked. Not everyone wants to see them-it’s a personal choice, but you are certainly entitled to see them.
Sarah xx
Yea I got a copy of all my medical records but just from May to July to cover the surgery, requested them before I knew I needed chemo so think I may request the august September notes right now x
Hi Faloola.
Yes in my case it was worse than 1st one shared, but they may have had their reasons. Maybe they felt i was new to this and needed in small doses. Or they missed things - who knows.
I agree with others - it is defo a personal choice thing. I like information as it helps me make informed choice but also gives me ability to chase up mistakes. The healthcare system is not faultless, so if i can help track my own case surely it's win win in my option.
If you can, try not to assume worst case - and do ask questions to the nurse or oncologist until you feel you have the right answers.
Good luck and sending positive hug

Hi,
Thanks for that. I did say to the oncologist is it bad, bad bad? Or bad bad bad, lol he replied it’s bad it’s a stage 4 incurable and inoperable. I said yes but that does not mean not treatable.
I advised him on my cancer 10 years ago statistically there was a 40% chance of being here in 5 years. I said well it’s been 10 years and I’m still here.
the moral of the story I won’t be written off.
Cath
Hi,
He is a year older than me.
it was funny at the Beetson my DOB was taken 4 times and they joked they had the right person as I never looked my age. They even took my picture lol I know that’s for their records ,
I will just need to go with the flow just now. I’ve been told the Beetson is a centre of excellence .
Cath
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