Phone Consultation

Hi PattyK. That sounds good news about the kidneys and no stent is one less thing to worry about. Sounds like the car saga could be going on for a bit longer - it’s so frustrating when no-one will accept responsibility for a fault isn’t it? 

Hopefully you can put it to the back of your mind for a couple of days and enjoy your mini break in this lovely weather

Take care

Karen x

We have the weather for a trip to the caravan , it’s amazing is t it !

So glad the bladder issues are resolved for now . He really is getting good and thorough care . I am practically watering my parents in this heat as dad forgets to drink and it causes all sorts of bladder issues .

Tell your husband to have a wonderful few days away . 

That car sounds an absolute nightmare and from purely a safety aspect it is good they have noticed . Sounds as though many issues could have surfaced .

Hope it all gets resolved soon .

Enjoy the sunshine and hope you get time to relax too!

Court 

Thanks Karen & Court!

Yes its a big relief for him about the kidneys. He is, as he said to the doctor a constant worrier and I know that. We worry for each other and Scotland. I think for the fact that the doctor says that it may not now be possible for them to insert a stent makes him a bit happier as he said a couple of weeks ago he doesn't think he could go in for another operation to be `poked n prodded` again as he said but the thing he he has a hernia now where his stoma is and he refuses to get that seen to. They wanted to take him in to fix that but its on the site of his stoma and they said something about having to re route all that as well n he's just not up for it well just now anyway I think if they told him he needed to get it done he would have no option you can actually see it bulging through his clothes and it looks quite ugly. But he's his own person and its up to him to decide. We're just hoping the chemo goes as well as this has which all begins in a week's time. Take Care Everyone!

Vicky xx

That's great news, except the car issue. Please for you both. 

Thanks Dadpool40

Yes he's so relieved about the kidney issue. The urologist is not to concerned and has told him to just keep doing what he's been doing and keep up his fluid intake. He starts chemo treatment this Friday intravenous first (Oxapilatin) and the Capecitabine tablets twice daily for 14 days before a break of no treatment at all for seven days before the following cycles. Just hope it does something for him. 

Vicky 

Hi PattyK, good news about your husbands kidneys, not so much about your sons car! All the best for his chemo on Friday,  and go enjoy the warm weather,  it got to 30c in my living room, I was just comfy!! This time last year I was complaining that 23c was too hot, seems to have shifted to me being cold. All the beat for his treatment,  hope it all goes well, amd hope the car gets sorted soon. Rosie xx

Hi Rosie!

How are you?? I was wondering where you had got to!  Hope you're feeling OK. Well the weather in Scotland has got a good bit cooler now and we've had rain- bet all you down in England are jealous because I know you are desperate for some. Yes this Friday `C Day`.  We have a consultation tomorrow with the oncologist but think that's just to go over everything that will be getting done. We went to the caravan last weekend and I don't know if you seen my post Court replied to but Jay had a little bit of a breakdown while we were there. He was on really bad `downer` for a couple of days. It took him a while to get out of bed on Sunday and he said he just felt like `ending it all`. I got a bit alarmed about this and posted here for some advice and Court must have contacted one of  the specialist advisers here because I got a post from one of them just to say they're there if he wants to speak to anyone but he's quite a private person and I don't think he would. He contemplated suicide a couple of years ago when work problems were getting on top of him and he got referred for counselling which did actually work. I asked if he would consider it again and he said no. By Monday though he seemed to back to his `old self` again cracking the `one liners` etc. He said it was just something he needed to get off his chest and clear the air. He thinks a lot is being put on top of him just now and that nobody seems to ask what his needs and wants are and that he is running around trying to please everyone else. I've said to him we can't read his mind and if he doesn't say then we don't know. He likes cooking and watches all these cooking programmes and is always trying to get creative in the kitchen. With me it's throw it in the frying pan or microwave but he likes to add this n that to what he's making. He watches cooking shows with James Martin and always tries to copy what he makes sometimes it turns out not bad mind. Anyway he says to me that I don't cook dinner for him but every time I make something for some reason I've not done it right it's either under or overcooked or I've not salted it enough etc so I just take it for granted that he likes to cook the dinner etc. And the car thing is really starting to get on top of him now. He thinks William is taking the `P` with him because he says not once has he thanked him for taking him up and down and takes it for granted he'll do it. I've had a word and told William to at least offer to put fuel in his dad's car or do something else for him to show his gratitude. The mechanic at the garage wants to see him now I think to find out what he's doing. Jay came up with a solution that he just cut his losses and sell the car at a loss but don't know if he wants to do that. It would at least get it off his hands and then he can go and get another one. It's a carry on!!  Thanks for getting in touch Rosie I'm sure everything will go well on Friday and hope you're keeping well too. Take Care. 

Vicky xx

Wow, a lots happened, and so much like me and Steve!!! When we split for a few years, despite seeing him every few days, holidays together, he too said he'd "do himself in" I knew if he had Tia, the 1st cat we brought back from Mallorca, he'd be ok, she was his number 1 priority,  above me, and yes we rowed about it, I remember coming in, laden with shopping bags, I kicked the front door shut, I'd seen Tia outside, nowhere near the door, but she must have ran after me, but the door hit her, not hard, wow did he explode, that really caused some problems, seems mad now, but at the time, with all the rest that was going on, but we got past that, he always cooks, watches the programs, recordable them, I'm not a fan of anything spicy, or herby, my mother only knew how th heat beans or soup, cook chips, and on a Sunday we has q Sunday lunch, she always bought tinned processed peas and tinned carrots, she thought it was quicker than fresh veg, and cheaper, so my taste buds are simple, so he complains when he is cooking that a lot of times he has to cook 2meals, even though I keep saying I can feed myself he has to feed me, I lost 12 kilos very quickly without trying, one of the reasons I went to Dr's, so since we got the diagnosis he's trying to feed me up,saying he wants to make sure I'm eating good food, not junk. So I can understand how you felt when he said that. The car seems like it's still a big problem, it'll all come out in the wash. I spoke with the consultant today, he said that he wanted to make sure I had the best op, and he thought that the lady at Wythenshawe who does robotic surgery would be the best, well the bloke I saw last week said he was going to refer me to them, but it'd be 6 to 8 weeks, which is why I said id like the consultant at local hospital to do the op, want it out of me now, he rang this lady, I've forgotten her name, she was on holiday, but took his call, she has no clinics next week, but she's agreed to see me, and then hopefully,  everything crossed, do the op at the beginning of September. I'm impressed, he's got me seen quickly, she thinks I may not even need a stoma, but as its spread to the nodes I will probably need chemo, I'm still prepared for a stoma, as there's still a chance I'll have one, I'm impressed he hasn't just done as I asked and done the op, but that he's said I'm still young, I wish 54 til October!! That he thinks someone else can do a better job, he has an ego too, so more impressed, he's persuaded me to see this woman, Wythenshawe is closer than Manchester Royal too, so Steve's not so stressed about visiting, he hates the run down the A34 to Manchester Royal, so I'm now floating, not sinking into those shark infected water round my little island, fingers crossed next week I'll be swimming happily knowing I have some sort of treatment plan. Its still scary, I still feel overwhelmed,  but with everyone on this site helping and propping me up, I'm doing better. 

Yes we're rather desperate for water, 2 weeks ago I drove past the local reservoir and it was really low, I will see it tomorrow no doubt when I take Joan out for a drive round, she fell in the early hours of Monday, and managed to get help to get back up and into bed, but she didn't tell me on Monday,  Carole, she lives next door, told me, so I tried ringing her yesterday,  for 2 hours it was engaged, tried her mobile, switched off, she's 87, I texted her neighbour,  who went to try and get her phone sorted, turns out she'd rang the chemist in the morning and not clicked it off properly, and she swears her mobile was on, anyway, she said she didn't want to put any more stress on me, so I said I'm stressed because she hasn't told me herself, she said she was waiting until she saw me, she's a wonderful woman, and since 1976 she's been a big influence in my life, so whenni see her tomorrow I have to be tactful, and try to tell her she needs to keep me up to date, because she has a good support system I'm not too worried,  she has trained all her neighbours very well over many years, I live 5 mins away, but she has lost of friends that have keys that can get to her, but I do get concerned,  they rarely think to ask her if she wants a drive out, so she doesn't get out much, which is why I started taking her out each week, she's more worried about me than she is about herself, she needs to stop stressing, but she won't!  

Hope all goes well this week for Jay, I'm sure he's fed up, I know I would be, but I'm sure he'll be ok when the new path starts, and when your son gets his car sorted. I try to be around on here, and I remembered you said he had appts this week. All the best to you both  Rosie xx I'm waffling again, sorry!!!

Your'e `waffling` Mrs because you're excited! or buzzin' as they say that hopefully things are starting to happen for you and long may it continue! You sound great a whole lot more upbeat than what you've been. Jay is a lot lot better than what he was last week. He has it in his head that he's going to go here and they'll tell him they can't do it. He's a bit of a defeatist! We're both really nervous but excited-like yourself- at the same time. I feel slightly more positive than I did a few weeks ago and as I said on here previously being `cautiously optimistic`.  Hopefully soon you'll get off that wee island and back on to dry land. Best wishes to you too and fingers crossed your treatment starts soon. Will keep you updated on Jay. Take Care

Vicky xx

I'm certainly more settled now, though as you cautious, fingers crossed it'll be smooth water now, I'm hoping that there'll be an op soon, I just want it out, though I'm worried that it's spread as its into the nodes, but I'm doing fine, one minute,  one hour, one day at a time. I just took Joan out for a ride round, or so I thought, she wanted to 'go look at mobility scooter that fold up small' now bear in mind shes 87, I'm going to be out of action for a while, and most of her friends are getting in a bit, so 8 took her, got a wheelchair from the disability shop so she could go in, looked at them, but they were so heavy, or they split into 5 bits that either she or her friends wouldn't be able to put back together again, then she made a remark, whilst thinking I wasn't around, saying she would be ok with a light wheelchair, well that means muggins will have to push her, and I have a glass back, had lots its of surgery for it, eventually she settled on a light wheelchair that I can manage and that her friends should be able to use. Then off we go for a drive round, so I thought,  when she said "I'd love to go in sainsburys, I haven't been in a supermarket for years" so muggins took her, she had a look at some tops, I know not why, she has so many clothes, but off we went round the store, the only thing is, I saw a lovely cardigan, very soft, dove grey, with a hood, so l bought that, I was pushing her, it was freezing in the store, so I took my cardigan off and popped it round her shoulders, qn I should have got a basket, but I didnt, s I didn't think we'd need one, so off we set, she wanted a towel, some roast ham, and a fruit tartan as a treat, I picked up some lamb chops, had to pop them down whilst I handed her the cakes to look at, she settles on a strawberry one, they looked lovely, so I got 2 for me and steve, wandered around then wentbto checkout,  half way home I wondered where I'd put the meat, as I couldn't remember seeing it on the belt as we checked out, well turns out I must have left it in the cake display!!! I'm going through a phase of waiting lamb chops, not a joint, just chops, and Steve is happy I'm eating well, but the chops looked lovely and I left them, head was all over rhe place, as I wasn't expecting to be taking her to 'look at' scooters, let alone pushing her round a supermarket, but she was happy,  I didn't have to make her lunch as l usually do each Wednesday,  as today I'd Thursday, she used to go to the church coffee mornings on Thursday, but can't do it now, but as I said, she trains her friends and neighbours well, she pays for the lunch she would have had at the coffee morning, they talk for hours, and her friend brings it to her. She's had a fall, and is vmbattrrrd and bruised, but she was determined to go to look at scooter, even though I've given her my scooter to use, it'd get her to the coffee morning and back, but its a busy road, but she didn't use it when it was hit, when I asked her why, she said she forgot how to use it!! That scooter is a robust one, I used it for when we went for walks with friends and my back was playing up, I don't think she would go out on it unless someone was walking with her, and it's very heavy, it fine into my Rav4, but all her friends have smaller cars, but she could have used it in the fine weather, I'd have walked with her. Anyway, I'm waffling again, I'm home now, exhausted and with a migraine threatening, so will rest up, I hope all goes well with Jay's appts, keep in touch, it does help my mood to waffle on!! If you don't mind me waffling!! Take care Rosie xx