24 year old just diagnosed with bowel cancer

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Hi everyone. I am 24f and on Thursday I was diagnosed with bowel cancer following a flexible sigmoidoscopy in which a 30mm polyp was found and biopsies were taken (they did not remove this then, as this was too big and I need to be referred to a different hospital) he advised them he did think was benign 

My doctor rang me last Tuesday and asked me to come in face to face on Thursday and bring someone with me. On the call I was advised some high grade dysplasia was found however they were waiting for further results. On the meeting on Thursday, they confirmed I have cancer. 

I am a complete mess right now. At the appointment my doctor advised he thinks we have caught this early and I will live a normal and happy life. He said 2/3 years this would’ve been bad. He thinks this can be removed via TEMs procedure, however if not he thinks this can be removed via surgery. He said the polyp is in a good location for only a small part of my bowel to be removed, I shouldn’t need a stoma but if I do perhaps temporary. 

I have my ct and blood tests tomorrow, and an MRI on Thursday (I think it’s more rectal cancer but I haven’t been officially told). I am so scared, the main thing going through my mind right now is chemo and radiation, and losing my fertility at 24. I am in a long term relationship and in the next few years I wanted kids.

I am so scared these scans will say this has spread. I so desperately want this removed just with surgery. Has anyone experience with removing bowel cancer with no chemo or radiation? Not sure how I’m going to get few these next few weeks. 

  • Hi Leighsp

    I wanted to just say hello and say how sorry I am that this has happened to you at such a young age. 
    It’s sounds positive that they’ve caught it early.
    Don’t worry about treatment  right now your team will have a treatment plan for you once you’ve had the scans. Yes it’s terrifying but you can fight this once they have a complete picture. You need to have time to process this shocking news  
    Others will be along that have knowledge in abundance

    Im sending you a hug.  

    Ann
     ‍Art

  • Hi 

    Welcome to the forum . But I am so sorry to hear this .

    However they would not say that if they did not mean it . Surgeons never sugar coat things . If they think they have caught it early then that is from the visual information they have and years of experience to back that up.

    We are here for you ,

    Macmillan has teamed up with Bupa to offer six free counselling sessions . If in time you feel this might help you process things our helpline staff can give you more information on 0808 808 0000.

    Bowel cancer caught early is very treatable . Phone our helpline staff as they will be able to guide you on egg harvesting etc . We have had forum babies following treatment . Rest assured !

    One step at a time and hope tomorrow goes smoothly.

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you so much! I need to just try and focus on each day at a time, and not let my imagination run wild! I have a few classic symptoms but I am not ‘ill’, if anything hearing the news has made me more ill and it’s a mental challenge. I’m ready for this to be behind me but it’s only just begun Disappointed

  • Thank you for replying Court. I have been told this is the worst stage, and I don’t think they are wrong. I never thought I could be this upset and never thought anything like this would happen to me so young. I just wish I didn’t have to deal with this stuff and could be a normal 24 year old. Once my plan is in place I will feel better, but these tests and the results are making me feel so anxious! But I need to focus on what the doctor told me and stop with dr google lol, as a lot of the time it shows me the worst case scenario 

  • Hi . You’ve had some great replies but I just wanted to add a link to this booklet which may help you?

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YoungPersonsGuide_BowelCancerUK.pdf

    Please stay away from google - it is out of date and downright scary in places - stay on here and/or the Bowel cancer uk site and you can ask anything you like

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • No words, the others have said it all, just a big hug to you.  

  • Hi, , yes I had rectal cancer, straight to operation to remove (LAR) but the biopsy had vascular invasion V1 so then had adjuvant chemo afterwards. This is not mandatory but recommended. Perhaps you could ask about storing eggs or embryos? Take care.

  • Thank you so much Karen! It is very useful!

    it really is, I think I also need to remember that every case is very different, there’s no one size fits all answer and it’s pointless me trying to find answers when we don’t have them all yet. Unfortunately I’m just going to have to wait, but I’m off work now and going to try and enjoy this time with my friends and family before I get the results of my scans back! Doing the things I enjoy xx

  • Thank you!! It comes in waves of sadness, but then I know deep down I can fight this and I am going to be ok!! 

  • Thank you for your response! Yes if it comes to it, I will need to have the treatment. I am young, and there are options to help, plus it doesn’t always cause issues and there’s every chance I can still get pregnant in the future! Need to remind myself I’m only young, and going to focus on making myself healthy and ready for whatever is coming cx