Tingly pins and needles

FormerMember
FormerMember
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I keep getting new side effects...I felt a bit better for a while...but now feel down again.....I have very bad tingling in hands ...can't touch cold water...even with thick gloves inside rubber ones....taking things out of freezer is terrible....I'm worried that this is how it's always going to be....it's so disabling..... also very tingly all over....especially down below....and slight tingly burning when weeing and emptying bowels...has anyone else had this? I'm drinking lots....and weeing lots...don't feel like I have an infection...urine is clear.....I'm just wondering if this is another side effect of the capecitabine  and oxyplatin infusion ...although I had the infusion 10 days ago....I'm worried that the treatment might be damaging to bladder?  Also getting ulcers under top lip....and dry mouth and sore lips....oh the list goes on...I phone the helpline and the nurse is very sympathetic ....but says I have to wait to see oncology doctor to talk about these things.....but that's not till a day before next cycle....any replies gratefully received. :-) Irene

  • Hi 

    Sorry to hear about your situation . Your oncology team might want to know about your mouth ulcers as I think there are special mouth washes . Your Gp might be able to help you if you can’t get through . It was something my mum was warned about .

    I can only reassure you the oncology team will assess you and assist you . It does take a wee while to get the balance right .

    Hope tomorrow is a little better for you. 

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Thankyou Court.....I have phone appointment with my GP tomorrow ...so I'll see what he says....I have difficulty talking to the hospital team...they are just so busy...when I phone the hotline....and tell them my symptoms ....they don't seem to know what to suggest....I seem to find out more on here ..thank goodness ....thanks again for replying