Pins and needles and swallowing

I have a runny nose too..can't stop sneezing like I have a cold....had the first round of oxaliplatin  today...terrible stinging all over....hope we can all feel better soon...

I had exactly the same, like a bad cold or bad . It was mostly better in the morning, and this morning (Saturday) is fine.

Hi Ags, just a wee note to say I’m finding swallowing easier if I point my head down! (Sounds weird I know!) as opposed to facing normally or extending my neck. Less ‘standby’ on the throat 

Suzy

Thanks Suzy will try that ... eating is starting to feel like a war ... I know I need to, but ..... having said that managed to scoff a load of fudge yesterday that was ok .  I got a really bad rash this round, head to toe, hot and sore .. keeps coming back in hot batches.  You said you had to really think these tablets are my friend, not a nice one, that’s my mantra .... just been really sick, sorry, and think they’ve all come up .... part of me is pleased may have a less grim day attached to my hot water bottle.

ive another 7 weeks to go ... I know in the big scheme of things it’s no time but it feels like an eternity.....

when I saw the oncologist he said if it was to return it would within 2 years, but mortality was 5 years.  Has anyone else had this ... I know it doesn’t mean I’m going to drop dead in 5 years necessarily but I am starting to plan my bucket list, sorting wills and pensions out.  It’s weird to think I may not make 60 and I feel now, especially with covid, that my time being stuck in feeling ill is wasting time. 

The worst of the Oxaliplatin definitely wears off after about 4-5 days. Hang in there! I had my fourth and last (hurray!) Oxaliplatin infusion yesterday and find it much easier to cope because I know what is coming. If you find it too hard your oncologist may reduce the dose - mine did so after each cycle, even though I wasn’t complaining, I just let her know exactly what happened. Hope you feel better soon too x

PS Round 3 I had the cactus prickling INSIDE my nose - painful until I breathed in warmer air. 

Hi Ags, oh poor you, being sick. Have you been given “back up” sickness tablets? I was really sick with vertigo during cycle one - the chemo nurses told me to insist on a face to face appointment with my gp, who prescribed a completely different anti-sickness tablet (with my oncologist’s blessing). They all apparently work in different ways, you just need to find the one that suits you.
Time does drag when you are feeling rotten. But one day it will suddenly be your last cycle - and you will have done it!
I do feel for you, hope you feel better soon x

Oh no!! Thinking of you! The nausea is awful! Though I have VERY LUCKILY kicked it to the kerb as soon as I’ve taken one of the anti-nausea tablets & for that I’m very grateful! Hopefully you have a good cream prescribed for the rash? They send me home with a good one yesterday for the dry skin on my hands (I took an area of pinprick rash which was hit & itchy on the inside of an elbow during last round too so hopefully it’ll have with that if it returns)

All I can say is it’s one day at a time & sometimes even just moments!

I wish a better day for you today  Suzy