My diagnosis on my liver

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Hi had results from my liver mri, I have a tiny bit on my liver, it did’nt show up on the ct scan and my consultant says it could be about 1cm he said it is curitive he said 98%of my liver is fine. He said gold stranded is an operation , but there are other options if I prove too much of a risk for operation, could be, some sort of radiation and he said he can really  turn it up because it is so small. He doesn’t know if it spread from the bowel.. I am very scared  because I have a very big hernia in my upper stomach and it was because of that my husband made me go to the hospital. My pelvic and rectum came back clear, this as not done much for my anxiety. Sorry if this is a bit rambled. When I left the hospital it was a call from the Royal free saying I had a telephone conversation with the consultant by my daughter thinks he shoul see me  before he agrees to surgery because she said  don’t want to happen what happened before when they cancelled on the day.  Anyone got any advice. 

  • Hi 

    Tough Day for sure but so glad your husband made you go to the hospital . A completely incidental finding and caught whilst it’s small and easily removed . My mum has always had surgery for her liver issues and I have to say the liver surgeons are amazing . The centres of excellence are highly trained and will get that removed . 
    Is the Royal free for the liver surgery ? Honestly I don’t think it will be cancelled. Liver surgeons like to get onto these issues when possible . But I can understand your concern . But I have found them very keen to operate when they can .

    I know this is hard to process but it sounds tiny and some sharp eyed radiographer has done their job well . I am Really confident they will get this resolved. But it’s not easy to process .

    They might be referring to Radio Frequently Ablation . I looked into it when my mum was in treatment but for the liver she opted for surgery . Plus the liver regenerates . It’s a remarkable organ .

    I hope you get a good rest tonight . Just remember my mum has seen off ten liver mets and you can get through this too !

    But I also know it’s a blow but you are going to get there and we are right here supporting you . 
    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi Court thank you so much for replying, I am feeling drained, I was a bit shocked to be referred to the Royal Free don’t know about their cancer treatment, I’m under the Macmillan centre part of the UCLH  here in London. My daughter took notes, she was allowed in with me. The consultant said it’s not has hard as colon cancer to operate because they don’t have to join them together. The dr. Said I had two hernias and the smaller one is over the liver, so I’m lucky that they discovered the dot. Well they must have passed the information over from one hospital to the other. If this surgeon thinks he can operate then that is good. I think it is wonderful how your mum has survived all that has endured. Thank you once again take care xx

  • Hi ,

    I have just checked and the Royal free is a centre of excellence. They sound as though they are making fast work with your situation. I think you will find them very helpful . My mum said just the other day she found the bowel worse as you had to get use to your bowel working again . 
    It’s amazing that your hospital visit uncovered this .

    Court 

    Helpline Number 0808 808 0000

  •  Hi Court ,, I really appreciate that you took the time to do that. Thank you so much. I think I assumed that the uclh  and Macmillan centre would deal with it. The location of the uclh is in a busy heart of London, The Royal Free is near Hampstead Heath. I know my daughter saiid I was lucky and how much he had to zoom in to show the dot. I don’t feel lucky., I thought if I had cancer came back I might have had a bit of normal time, on the other hand I should feel lucky, I put up about my sister being terminal but what I didn’t put up, is  she passed away two months ago, just before I got my complete response results for the rectal cancer. She had it in so many places when decoverd. I hope this explains my overwhelming anxiety. I am in such grief.  Xx

  • I am so sorry to hear that  . That is such a sad time for you and I can totally understand how that is impacting you when you are facing this diagnosis. Then you have the pandemic to factor in .

    You take the time you need. Medically it’s advantageous to fine it when it’s so small but you are the one that has to endure the scans , the intervention etc and that is not what we would be wishing for you or anyone . However , we will be with you every step of the way and it sounds like you have a very proactive team there who will take good care of you and get you back to full health . 


    I hated it when my mum had to face more intervention, with a passion .  
    You have a lot to work through but hope they will move on this quite quickly .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi Court I did read through your mum’s treatment again. I hope I can draw some strength from it. At 1 cm he didn’t give me a stage.maybe I have to wait for the Royal Free surgeon. Thank you for being on this site.

  • One solitary met will be taken care of and the very fortunate thing in the U.K. they still only operate on the liver with curative intent in the most part   Really lovely words to hear from a surgeon . They are really efficient. You are in the best of hands and that’s not a cheap throwaway line . They really are excellent,

    With covid receding so quickly I think beds will not be such an issue either  

    Take care,

    Court 

    Helpline Number 0808 808 0000

  • Hi Court, thanks again, I’m 65 and my husband is 67; he thinks he might retire, but I don’t  it to be because of me.  What you have   Text back gives me a bit more hope. Xx

  • FormerMember
    FormerMember

    Hi  Sorry that the results were not as you hoped but it sounds from the conversation that you will getting some fabulous treatment. Fingers crossed this will happen soon for you and you can move on.

     
    I had a morning in work today and it was fabulous! A bit of normality back! 2 weeks off for Easter now! 
    My husband would quite like to retire as he loves pottering around at home, building things and in the garden, he is not 61 quite so he has got to get a few more years pension in yet Yellow heartRofl

    Take care Nelly and hope you hear soon when your treatment will start 

    lots of love
    xxx

  • Hi Phoebe 21, I was upset, mostly because I thought if all clear the anxiety might start leaving me.I can’t believe the speed the other hospital contacted me we were in the car coming home. They didHatching chickay they had discussed me with the other hospital the day before. I’m so glad you enjoyed your morning at work, are you doing a fazed return? It must have felt like normality, and how we have all misHatching chickd it. I still keep in touch with the staff that still work at the school when I worked there. Only a about 4 because most have left. I love hearing about all the moans. I did volunteer back there onHatching chick a week until this virus took hold. I’m due my second jab next week.hope the morning of work has put you on a high for thr Easter break, wishing you a happy and blessed EasterHatching chickHatched chickxx