Face to face on wednesday

Hi Nelly1955. I chased up my colonoscopy a couple of weeks ago (I’ve moved house and into a different health authority) and the girl on the phone said I’d get an appointment to go in and discuss it. I said ‘oh are they doing face to face appointments now?’ and she said yes. My new mantra is ‘thoughts are not facts’ so try not to worry about things you don’t know if that makes sense? Worrying won’t change whatever is said in the meeting it just means that you’ll be too tired and anxious to take anything in.

Sending you a big hug

Take care

Karen x

Hi Nelly, 

Just read your post and didn't want to just read it and not say hello. It is an anxious time for you at the moment and I just wanted to let you know that I am thinking about you.

I wonder if they maybe are starting to get back to a bit of normality and starting to do face to face again?  I asked my nurse when she called the other day when this would happen and she said hopefully soon for results, but not for the chats to just see how things are going.

Take Care Nelly1955

Lots of love xx

Nelly1955, if you are worried you won't take it all in, I think you have 2 options. Take a phone and ask if you can record the conversation. Or ask if your nurse specialist can be there to help with the data collection. All the best, take care.

Hi Karen62, thank you for your reply, I know I shouldn’t do this to myself. She text me today saying I could have a telephone call if I preference. I’m sticking with face to face. I hope colonoscopy goes well, and let us know send a big hug right back to you xx

Hi Phoebe 21, I did go in in January when I got a complete response. He did call me after the ultra sound to tell me fatty tissues on my spleen, like I say no one mentioned my liver until two weeks ago, but to be fair it wasn’t an urgent because it shouldn’t be until the 18 April. When I phoned the chemo nurse I think she mistook what I was saying and I got the Sunday appointment. So what she is saying she bought my appointment forward to not have me worrying. I am in so much pain sometimes with this hernia it makes me feel sick and a bit dizzy. Hope you are keeping well Phoebe , do you have chats with your nurse.? Lots of love to you xx 

Hi Gemmary, I did that before I had my daughter on loud speaker, but this time they said they will let my husband or my daughter in with me. I do seem to not be able to take things in. I’ve just found it hard getting the good news. I know this sounds stupid but I wished I never went to A&E  yes I does sound stupid because I anything is caught early it’s better. I have no symptoms of liver problems. Hope you are keepin well, and thank you for replying. Sending a hugxx

Thank you Phoebe 21 for replying xx

Nelly1955

I think it’s possible they are being sensitive to your anxiety too . You have had quite a lot of scans to endure in a concentrated period and I think they will want to assist you through that .

You have a good team. 

Court 

Hi Nelly, 

Feeling very well thank you, will be going back into work after Easter. I work in a school and I love it with all of the students It will give me something else to focus on.

Yes my consultant calls me once a month and the nurse calls me half way through, so I get a call from someone every 2 weeks or so, and a blood test every 2 weeks,  a few days before the treatment.It's because i am on treatment I expect and they need to check that I feel ok and my liver  function is stable. I must say my care is very good.

It is hard to take everything in, with a phone call,  when my daughter lived here I used to put my phone on loud speaker too and she used to make notes for me to refer back to. Hopefully this will be why you are going in, it's easier face to face.

Take care Nelly xxx

Hi Phoebe. I worked in schools first has a dinner lady then teaching assistant. I loved it.unfortunately.  went through a vey late menopause that’s when I had this first serious wave of overwhelming anxiety. Was in the dinners for 12 years and teaching assistant for 18 years, never hardly had a day sick, then I couldn’t work due to the anxiety, got over it ,made a new life over 55 s club and volunteering at school and food bank . Then lockdown, cancer and over whelming anxiety. Plus some upset in family. So I’m so pleased you are returning to work some normality I don’t think any of us thought this lockdown would go on for as long la it has. I thought ok 3 months and it would all be over. Your cancer team sound amazing. I don’t think I got on with my nurse that great. When I was going in-for radiotheraphy , they use to do the times for the following week, I was supposed to meet up with her on .a Monday.  I was allowed my daughter or my husband could wait in the reception part with m,e. My daughter was with me I had my treatment and I was Told to wait back in reception for the meeting with my nurse. I waited half an hour before I spoke to the girl on the desk, after did some ringing around., said oh she can’t make it she tried to call you but maybe no signal down here. So I showed her my phone, my records showed I had signal and no missed call.  I think I was lucky in a way last year that some one could come into reception and wait a bit with me. But scans and appointment on my own, which I think harsh but necessary due to keeping down risk of infection. My club do stuff on zoom but unable to take part, I’d ont know about you but I have lost a lot o confidence. They do singing , exercise, quizzes. I want to get Wednesday over and hope I can get back on then after Easter., I wish you alll the luck with your treatment and enjoy every minute when you get back to work. Sending love and hugsxx ;(sorry for long post got a bit carried away) xx