Anyone with experience of APER and chemo and radiotherapy beforehand?

Hi 

I just want to welcome you to the forum . I am going to tag in Kareno62 as she may have more insight into part of your treatment plan . I am a carer and my mum’s cancer was located on the right hand side .

Others may advise you too . Always good to get others experience and insight .

Take care ,

Court 

Hi Cagz, I can relate to the first part of your plan as I had 5 weeks of radiotherapy with chemo at Guys in 2019.  The chemo was capcitebine in tablets and this helps make the radiotherapy more effective. The treatment was ok and I only had minor side effects. Hopefully you will cope well with it. This part of the treatment worked well and shrunk the tumour considerably. I then had a couple of months before a Lower Anterior Resection and had a temporary ileostomy for a year, which has now been reversed.

The main operation was by keyhole and  recovery was straightforward. If you do end up with a permanent bag you will cope, you get used to it and can have a pretty normal life and there will be a lot of support for you. 

I wish you well for your treatment and hope it goes well for you. John

Hi I'm on my last 3 days of radiotherapy and capecitabine been well up to now no side effects 35 days seems a long time bur it goes quick ive got to waite 8 weeks for scan to see if it has worked then I face an aper and permanent stona im only 52 good luck hope it goes well for you 

Hi Bop

just wondering how you’re feeling now you’re coming to the end of your treatment?

I'm seeing the doctor tomorrow to discuss when I can start my radiotherapy etc but just want to get started with it all. I worry that the waiting will mean it spreads!

hope you’re doing ok,

take care xx

I'm doing well just a upset stomach. My bloods are fine seems strange not having to take them when you been doing it for 5 weeks hope all goes well for you take care helen x