Hi Phonenix58. I would just like to introduce myself & tell you a little about me. I am currently 60 years old. Like many of you this journey has not been easy. In 2019 l was diagnosed with a particularly aggressive breast cancer. After the initial chemotherapy was unsuccessful, I was prescribed further chemotherapy & subsequently under went a mastectomy & radiotherapy. Lymph nodes were also removed as my cancer had spread to them. All which had an a effect on my heart. Which lead to referral to cardiology. Fast forward 2022/2023. I'm still undergoing treatment but each blood test is showing extremely low blood counts. This has resulted in many scans & blood transfusions etc (we know the drill folks!). I'm now just over 5 stones, having started at 8 stones. I'm was noticing distinct deterioration & changes. So after all the tests l was recently informed l have secondary breast cancer in my bones. I don't know whether l was just trying to avoid the possibility, but l was completely shocked. Should have known something was up when a breast cancer nurse took me into my appt (that had been made as an emergency & remained). All of it is challenging, but one of the most challenging was how and when do l tell my 23 year daughter. She is an only child, so no sibling support. Eventually it was taken out of my hands. She had noted the intensity around hospital calls etc. Unfortunately although l could give her the facts it was worse than her fears.
Thank you if you have taken the time to read my story. I've noted that not many people respond on this forum and l fully understand why we are in a similar place of fear & sadly pain. However it has been a huge benefit to express where l am at in a forum where l know others will understand. I wish you all the very best
Hi Phoenix58
Weldome to the forum and I am sorry to hear that you have been diagnosed with Secondary Breast Cqncer in your bones. You might also find it useful to join the Breast cancer forum and the secondary breast cancer forum as they are a bit busier than this forum.
Wishing you the best of luck with whatever comes next.
Best wishes
Daisy53
Hi Marybernadette, It really is a blessing communicating with you. I am in agreement with you, l do think it has been all the foods changes etc that has led to a lot more younger people being diagnosed. The same with autism etc. My treatment has been a combination of oral tabs & iv. I've had radiotherapy previously but not recently. I haven't been referred to pain clinic, thank you for the heads up l will pursue that. Regarding my balance wow, not good one of my things was going to the local sainsburys weekly & getting a bunch of flowers (l love flowers
). A few months ago it was a truly horrendous & scary experience. It's interesting how people can see you in distress & just walk on by. I am really cautious now having fallen outside & indoors. I hope you got a really pretty walking stick, there are some quite decorative ones out there. Thinking l may need one soon! The waiting is what can really mess with your brain. I know it's in my spine. The questions is how further has it spread? It feels like strange territory. I've been here before but not quite like this. Before l was making decisions based on research etc ( l'm that person that doesn't buy a kettle without research!). But for some reason l feel all at sea with this. I am putting into the universe a better year for both of us!
