Anxious wife !!!!

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My husband has secondary cancer from prostrate to spine and was diagnosed on 15th Sept 2021 . Due to a catalyst of errors at the hospital his biopsy that was scheduled for 21st Nov was cancelled ! We are now back to a waiting list with no idea of new a  date . He is on a 28day cycle of Degaralix and nothing for his bones 

I am escalating this procedure but should I be worried about the time delay from diagnosis??? Everything takes so long 

thanks  ( a very anxious wife who’s not getting any answers 

  • Yes and it was the worst thing I have ever had to do. After I got home from the hospital after my operation the kids only knew about the collapsed vertebrae and I was recovering. When I received the biopsy results I sat my 15 year old down and told him I had prostate cancer and it had spread to my spine but not the staging etc. A few weeks later I found out that he had heard me on the phone and googled metastatic prostate cancer stage 4 and got really upset. I felt he didn't need to know all the details but I was wrong, we have since shared everything with him, scans, blood results etc and he now shares his feelings with us and when he is struggling. It has enabled us to also get help for him from his school. I had some good advice from my counseling sessions about telling my 10 year old and that was to ask her what she knew about what was going on with her dad, after all kids are not daft and mine especially have a real knack for ear wigging haha anyway it was horrible, she just said daddy has a bad back and the operation has fixed it and I don't want to talk about anything else and started crying, it broke my heart. We talked about cancer and how there are many treatments available and how strong her dad is and how I'm going to fight it. I just kept it all positive as I could, she still does not know about any staging or spreads and we talk openly around the house now. I live in a small town called widnes and everybody knows everyone's business so I did not want them to hear it from anybody else or hearing people talk about me and not know. 

    Regards

    Paul

    "Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"

  • Thanks for sharing that it must have been heartbreaking , I know as I am feeling it too. My 15yr old is aware and has googled a lot , more than I was aware tbh. He doesn’t know the staging Gleason etc but maybe this is something I need to explain to him . My 10hr old daughter thinks daddy has a bad back can’t walk properly but the special medicine will help him . I’m always thinking do we mention the C word ? My mum has it too so my youngest  is aware of its existence. We too live in a small village in N Wales ( not far from you ) and I dread her finding out . I’ve told every parent the school not to discuss it at home . I was so anxious that she didn’t hear it

    So afer reading your response I agree that we need to be honest with her . Thank you again you have been more help than you will ever know 

    stay strong and being positive is the main thing x

  • So sorry about your mum, your certainly going through it. My fear was that some parents may talk and then children over hear about my diagnosis and my daughter then finds out of them. They are tougher than I give them credit, it has helped my eldest though knowing I trust him and tell him the truth so he now confides in me when he is struggling. After all I am going through my biggest worry is my wife, kids and family so having them open up to me is a massive help. I wish you all the luck in the world and always here, take care x

    Regards

    Paul

    "Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"