Hi ,
I was diagnosed before Xmas to have breast cancer and that was hard enough to listen too and take in , then after a long wait for my ct and mri for the mdt team to decide weather I will have to do chemotherapy treatment or surgery first , I built myself up with a lot of emotions crying , sharing with family and friends anger and disbelief , then no it’s not real . I then got to the place because I had too ,that okay I will be unwell for a few months , I will lose my hair but looked for nice scarfs and decided I would wear a wig , I would have reconstruction and beat Cancer .
To now my oncologist said unfortunately it has spread to the lymph nodes and bones , multiple bones and is stage 4 , incurable .
wow , what the hell am I meant to do with that shocking news !
Absolutely devastating,my life feels like it’s changed over night , I’ve changed .
I am now on letrazole for a month now , Palbociclib for 8 days and denusaub injection .
I have 6 weeks off work to see how and if I have side effects from the treatment .
Other than achy joints legs and arms mainly , slight headache all okay .
But feel flat and don’t know what to do with myself , feel like I’m waiting for bad side effects and should be grateful I havnt .
Do I give myself more time ?Do I go back to work ?
How do I live my normal life when everything has changed?
My diagnose is invisible but there , its a weird and scary time .
I have been reading everyone’s messages on here and wow it’s a great place to get advice and support, and finally decided to write on here too .
Thankyou to anyone that has took the time to read this and hope I can get some advice from others and feel free to ask me as well as it’s important to be able to express your feelings and emotions and share ways to get through this rubbish process /diagnosis.
I would have sworn normally about what I call it , but don’t want to be chucked off the forum .
Best Wishes
Hi Miah2026 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies here, it might be an idea to also post in the secondary breast cancer group, which I can see you've joined, as I'm sure you'll find people with the same type of cancer as you there.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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