breast cancer and métastases in spine

I’ve been trying to reply to this message for around  3 days and tonyou too Ellie. Site has been playing up for me, but he’s Krystyna Xmas and so far new year has been a wash out for me, i has some radiotherapy on the 27th and the pain has been horrendous since, I also have cystitis which I’ve just got under control but had a couple of times when I haven’t got their in time!! Trying to walk fast with a walking stick doesn’t help I even had a wheelchair in hospital to help me get from A to B and then my lovely mams friend has loaned me her chair if I get another flare up again! Some good people, I’ve managed to get to Halifax to see my in laws and I’m debating if I’m well enough to go out till midnight to the piece hall? I’ll see how my pain goes. Hope this finds you well Krystyna xx 

Hi Peebee2,

this looks like it’s been written by me as it is signed Krystyna which is me, but it’s not from me and I’m also puzzled by my name popping up in the text,!!  I’m sorry to read the message as Peebee seems to be having a hard time, but maybe you can post a clarification? Happy New Year, I know fat chance. But it’s traditional so there we go. All the very best for 2019 to everybody.  Xxxx Krystyna (really!!!) 

I have honestly had a nightmare tying to post to the site over Xmas and have replied to you all on here on more than one occasion I think to you Krystyna around 6 times!!! Lol so I hope someone or all of you have had replies from me and thank you all for your good wishes,

I am at this minute climbing the walls with nerve pain as my tumours have fractured my spine and are unfortunately pressing down on them... I’m demented, I spend the day standing as sitting is unbearable... had the radiotherapy on the 27th so hoping this flare up goes soon and I can relax again x 

Oh Peebee2, how horrible. I too have nerve pain from a tumour pressing on my sciatic nerve......the blasted tumour itself is bad enough but the combination is hellish. I was told of a ‘capsicum patch’ which solved a friend’s son’s pain in one go so I mentioned it to my GP this morn8ng...she looked it up...£210. Ok, not getting that then!! But the similar cream is £15 so we’ll go with that, and oxycodol (does anyone know anything about this?)

lets all keep on keeping on, girls and boys, and pray to whatever your god is that our distress is relieved but that we are still alive to enjoy it!  Krystyna.

I’ve just woke up!!!! I’ve finally managed to get some sleep pain free!!!

i could happily go back to sleep but haven’t eaten a lot and I can smell the mother in laws Sunday roast cooking so I’m going to enjoy this.

krystyna is the medicine you have mentioned called OxyContin/ Oxycodone remember them from my pharmacy days they were fondly known to the drug takers as Hillbilly Heroin... quite potent but quite effective xx 

Very glad you got a good rest there Peebee!

I've just had 2 hours myself, and could do with yet more. Noone cooking here though, so some cold leftover stuffing it is! Lol

Lass

Xx

Hi Krystyna, I too have mets in my spine, fortunately only T4 and T11 with their attached ribs, and I also take pregabalin. In addition I take paracetamol (4x2 daily), max strength ibuprofen, (3x1 daily) and codeine, (4x 30mg daily or more as necessary).

My dr is pretty cool about prescribing what I ask for including anti-depressants which have been a boon.

I find that works well for me, I try and stagger the paracetamol and ibuprofen so that they overlap, but I take the whole lot together before bed! With 2x30mg codeine to boot. I seldom have any trouble sleeping

I buy my own paracetamol and ibuprofen as they're so cheap at supermarket pharmacies it's not worth messing about with scripts.

Happy New Year!

Hi and Happy New Year to you too. Thanks for taking the trouble to reply. I have been prescribed Shortec, having already taking Longtec night and morning. I’m not impressed with Shortec, have been taking it for a week and still in a helluva lot of pain if I move around. I’ve got codeine, I wonder if I should take it as well as everything else - I also take paracetamol and iboprufen. 

I wish we could phone the GP, it would only take five minutes, but it doesn’t seem available in our practice anyway.  Heigh Ho, sorry for the moan. Any ideas about pain relief would be massively welcomed!!!  Regards, Krystyna 

I’ve just remembered the medication your on shortec/longtec is OxyContin from back in the day. The shortec brand became widely available when all local PCT’s became aware how much money could be saved prescribing this over Zomorph and other branded morphines and sure the brand your on was saving £100’s per patient so all docs prescribing them were sent a memo via computer to advise on the new prescribing of them and if they didn’t switch they would override them anyway. 

I wish that a doc could hold your hand like in the film  the green mile and ask how the pain is and just cling on and say that’s what it feels like so prescribe accordingly once you have got your breath back and then send in the other guy who sucks all the bad stuff out and we can both get in with our days!! Lol xx 

Dear Jo,

Sorry for the late reply, I only read this message now. I am spending some time getting updates on everyone, getting back in touch... 

so much has happened for my Mom, ups and down... 

Please let me know how you are doing? 

it means a lot to me to hear from you,

Sending Sun!

Hugs 

melanie