Craniectomy

Hi Slugsie 

I don't have the experience you're looking for but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted.

If you don't get any replies then probably the best person to tell you what exercise it's safe to do is your cancer nurse specialist, sometimes referred to as a keyworker or a Macmillan nurse.

While you're waiting for replies, it would be great if you could pop something about about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Thanks, Latchbrook.  Have updated profile, as suggested.  I have already tried to get guidance from my CNS but this is not her forte.  She has many other wonderful qualities but I have been getting differing advice from her and my neuro-surgeon.  Basically, I am allowed to do whatever I like, even skiing so long as I am wearing a helmet.  However, when I tried a bit of higher (not high) impact activities than walking, I was set back with swelling at my craniectomy site, visual disturbances and extreme fatigue and that lasted 10 days.  It is very frustrating and I'd like to know if anyone else is further down the track than me and if I can hope to do more in a few months time or if it's time to come to terms with not being able to do the sports I used to do.  I am now 9 months post-brain surgery and 7 months post thyroidectomy and 4 months post my first radioiodine treatment.  It is difficult to know if it is the brain still settling down, my body settling down from the thyroidectomy, the treatment or the cancer that is causing these effects.