New to the group

Hi Mrd1967 and welcome to this friendly group. I am sure you will get lots of support and help here as you go forward. I had this treatment for MIBC. Following 6 weeks of chemo (Gem/Cis) I went on to 6 weeks of daily chemoradiation. I believe the latest protocol is 4 weeks with a higher level of radiation. I tolerated it all quite well. Happy to try and help with any questions you may have. Best wishes.

Welcome to the group,I hope you find it helpful and supportive.Best wishes Jane 

Welcome the group.

 I have not had the same treatment as you are having as I had the Gem/Cis chemo followed by bladder removal. But, when they found a heart problem and a clot in my lung, just before the operation, radiotherapy after the chemo that had just finished was described as ' also curative'. I hope you find that useful to know.

In fact, my op, though slightly delayed, went ahead when the clot was dissolved by me injecting blood thinners for some weeks.

I hope things go smoothly for you on this new path.

All the best,

Latestart

Thank you for the welcome and open replies. I appreciate your responses. I know I have a few choices to make and discussion with consultants I’m just weighing up the Urostomy/treatment route. 

If you go for the urostomy you would only need scans/blood tests as follow up once you have recovered.It is a big surgery but it’s manageable.It can affect sexual function in both men and women so that is something to consider if that is important to you.Best wishes with whatever you choose.We are all here to offer support and answer any questions.Jane 

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