New to the group

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Hi, despite having been diagnosed back in 2024 I am new to the group. I was wondering if anyone has been through chemo and radiotherapy for muscle invasive.  Despite the numerous turbt and immunotherapy I’m now faced with a new challenge. 

  • Hi  and welcome to this friendly group. I am sure you will get lots of support and help here as you go forward. I had this treatment for MIBC. Following 6 weeks of chemo (Gem/Cis) I went on to 6 weeks of daily chemoradiation. I believe the latest protocol is 4 weeks with a higher level of radiation. I tolerated it all quite well. Happy to try and help with any questions you may have. Best wishes.

    Best wishes to All,   rily.

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  • Welcome to the group,I hope you find it helpful and supportive.Best wishes Jane 

  • Welcome the group.

     I have not had the same treatment as you are having as I had the Gem/Cis chemo followed by bladder removal. But, when they found a heart problem and a clot in my lung, just before the operation, radiotherapy after the chemo that had just finished was described as ' also curative'. I hope you find that useful to know.

    In fact, my op, though slightly delayed, went ahead when the clot was dissolved by me injecting blood thinners for some weeks.

    I hope things go smoothly for you on this new path.

    All the best,

    Latestart

  • Thank you for the welcome and open replies. I appreciate your responses. I know I have a few choices to make and discussion with consultants I’m just weighing up the Urostomy/treatment route.