Muscle Invasive Bladder Cancer

Hi CASSERJac9e60 and welcome to the group although sorry to hear your husband is suffering the effects of treatment. I had similar treatment and the same side effects . The radiation continues working after treatment finishes and the side effects can build up. Bowel problems are common with any pelvic radiation. My GP prescribed tablets to help with the fatigue. In my case, I had bouts  fatigue that came over me for a few hours each day and I had to curl up on the couch until it passed. It is important your husband drinks a minimum 2 litres of water a day even with the frequent urination. There will be radiation inflammation in the bladder and not drinking causes the urine to be acidic and irritate the bladder causing the feeling of needing to go . The positive is that it should gradually get better. They have to wait some weeks in order for things to heal before they can have a look to see how successful treatment has been. As always, seek medical advice if things do not improve. My treatment was over ten years ago now and so far so good. Best wishes.

Hi Rily.    I've just come across your name again not sure if you remember me but take a screenshot of your message last year as you seem to be on the same treatment that I had plus the same stage of Muscle invasive bladder cancer.  I had the same as you which was cisplatin  Gemcitabine.  and now I'm on immunotherapy which is durvalumab.    you give me great reassurance along the way it hasn't been straightforward but on average only the chemotherapy made me ill  having a blood transfusion and now I've got clot on my leg but I'm taking blood thinners but nothing too cry about radiotherapy also good and I've had my 10th immunotherapy infusion with three to go finished in February rigid cystoscopy August 11 showed my bladder was clear thank God I also put that down to brisk walking every day and intermittent fasting I think that with the moon therapy is a great combination I know realize the difference between stage 3 and stage 4 as 4 is when it has metastasized so I count myself very lucky.    I'm sure you told me you had it 10 years ago and your in remission now so I just like the thank you for the help especially psychological help that is made me strong thank you brick house

Hi BRICKHOUSE . Really good to hear from you and great to hear your bladder is clear. I know how arduous the treatment is so good to know you are keeping fit. I hope all goes well with your further treatments. Keep in touch and Best Wishes going forward.