After Chemo -Immunotherapy?

Hi LB230, good luck with your meeting.

I had neoadjuvant chemo, Gem/Cis, 4 cycles, then robotic cystectomy (no spread found) then the Oncologist put me on to Nivolumab. I had 3 months of infusions but it caused peripheral neuropathy and so we stopped it so that if the cancer did come  back she has options for further treatment. I then had a month and a half of steroids to damp down the p.n. 

Now after 2 years my feet and fingers are mostly fine (important because I have a stoma so need to be quite dextrous for that). I do find that sometimes the feet get sore and may not always feel the floor well - important so as not to fall - but I keep up my daily fast walking and use walking poles in case I need stability and to give me an upper body workout at the same time.

I'm not on any formal exercise programme but what I do (and have done for years pre and post bladder cancer) is as least as much as the stuff they are talking about in the papers this week re bowel cancer patients, which is very pleasing.

Hope that helps, any questions happy to help if I can

All the best,

Latestart