Bladder removal

Hello 4halves and welcome to the group. That is such a journey you have been over the years it not surprising you are completely fed up with the situation. If you look at my profile you will see my journey only lasted a matter of months but ended with bladder and prostrate removal. Of course it will be up to the consultants to decide which option is best for you. Life with a stoma takes a bit of getting used to and I am still getting used to mine and adjusting but I know I've have no more Turbt's or invasive procedures to go through.

This group is very supportive and others out there will be along soon to give advice . I hope the consultants listen to your wishes. Please keep us informed and welcome again 

Best wishes 

Mark

Hi 4halves, I'm a female bladder cancer patient who went straight to bladder removal via chemo. My cancer was muscle invasive. I also had some post op immunotherapy though had to stop after 3 months because of peripheral neuropathy. 

Having seen what those on BCG go through I'm glad not to have had the prolonged treatment they face. I chose stoma and bags as old technology that didn't involve having to train a neobladder - not confident I could feel comfortable with that. 

Now almost 2.5 years post op and managing well. Hope your surgeon agrees to operate.

All the best,

Latestart 

Hi 4halves,Welcome to our friendly group.I hope you find it helpful and supportive.I had a cystectomy in 2019 and don’t miss my bladder at all.Best wishes Jane 

Hi, very understandable that you feel fed up. It sounds sensible to consider bladder removal, especially with CIS in the picture. Your consultant might even offer it as an option, although the kidney removal may influence their recommendations. When I was given the choice of BCG or RC, I chose surgery, partly with the idea of getting treatment over and done with in one fell swoop. It was a bigger undertaking than I had appreciated, but I have no regrets. Hope all goes well for you.