Post TURBT

 Sarahto Hi Sarah and a warm welcome to the group. There are various reasons why a Mitomycin wash is not used after a TURBT. It is not unusual. You may a have follow up TURBT and various scans. When all the results are in, they will come up with a treatment plan for you. Lots of experience here, so usually someone with an answer to any questions. Best wishes.

Thank you Rily, I expect everything will become more clear once I have had my follow up. 
It’s all been quite a shock as I have had no symptoms whatsoever until a few weeks ago when I had a gross haematuria completely out of the blue. Good job I suppose as I would have had no idea!

sarah

Hi Sarah. It does come as a shock. Many people have never heard of Bladder cancer even though it is one of the most common. The early days of uncertainty and not knowing can be he worst, but be aware, BC can be treated successfully. Once you have a plan going forward, you have something positive to focus on. Best wishes.

Hi Sarah

Welcome to the group. Pathology results will determine your pathway. It's good that it has been caught early. I only had one turbt and nothing was put in. Yes bladder cancer can sneak up on you but the fact as I say it has been caught early is good. Have a look at my profile I had reoccurring uti's before diagnosis.

There is lots of help and support on this forum. Welcome again.

Best wishes 

Mark

Thank you Mark. 
I will take a look at your profile. 
I’m staying positive but will feel better once there is a plan in place. 
Best wishes 

sarah

Hi rily 

I agree. I must admit I'd never heard of bladder cancer before my diagnosis and had never known anyone who had it. It was a shock to me when the consultant told me it was bladder cancer, I initially thought it was my prostrate giving me the trouble although they removed that at the rc as well. It was only when I joined the group that I found our how widespread it really is.

Best wishes 

Mark

Hi Sarah

I didn't have it either though I was expecting to have it. You probably received the same info pre TURBT that I had which is quite vague and doesn't go into much detail.

Once the pathology results are in they'll have a Multi Disciplinary meeting to decide which of the various treatments they think will be best for you. It isn't one size fits all. 

Try not to be concerned. They caught it early as you say. We have all been exactly where you are so know how you feel. And as you'll see from our bios we are all doing well on whichever pathway is right for us.

All the best,

Latestart

Thank you so much for all your encouraging comments. It’s helping me to stay calm. 
I’ll feel better once I know where I am with it all. 
sarah

Hi Sarah

I'm a little bit ahead of you.  First Turbt 25/02/2025 and then a 2nd on 08/04/2025.  Still waiting on my second set of pathology to advise how we are moving forward.

I did have the Mitomycin C but at the time they were discussing whether to or not.  I have a feeling different NHS trusts have their own approach.

Welcome to the group.

Best

Rob

Having been on here for a while I can confirm that each hospital seems to have its own way of doing things and probably it's the same for each specialist. I soon learnt not to be worried when hearing that someone was having something a bit different. They're all out to get us better asap, which is what matters.

All the best,

Latestart