Hi all - I hope everyone is managing their situations to the best of their ability? my heart goes out to everyone on here affected by cancer :-( - I am a 53 year old male, 6 months post diagnosis of stage 4 UT urothelial cancer (nodules also in lymphs and lungs) with no previous symptoms. I have just completed 6 rounds of chemo (cisplatin and gemcitabine) which has been relatively successful in that no new tumours over the period and existing ones are shrinking slowly. Just about to start on immunotherapy treatment (avelumab). It is a rare form of bladder cancer so really struggling to find anyone on even remotely the same journey to share stories :-( My oncologist is pretty direct and is telling me that the immunotherapy is maintenance only, that surgery is not recommended in my situation and that my cancer will start growing again in the future (1 -2 year MLO on how long the avelumab will old it back) which is pretty depressing to hear. Interested to hear stories of anyone else's experience with either Avelumab as a drug (effectiveness and also side effects) and/or anyone else with experience of stage 4 UT urothelial cancer?
Hi Rusty Wedges and welcome to the group, although sorry to hear of your situation. We don't come across Avelumab here very often but hopefully some one who has experience of it will be along. Best wishes.
