Bladder removal op imminent

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Hi all

Hope everyone is coping ? Xx

My MRI is booked for this Saturday and that's the last step before the op to remove the bladder.

I'm trying to be calm about what's coming next but that is the unknown ..my pain has been more intense since the TURBT and heavy blood when I Catheterise, that's painful too and often kicks off the bladder pain, and like tonight I'm up.

I think i have a good pain capacity but I'm nervous of the pain post op and the recovery, I push negative thoughts away normally and because I work in the NHS when I'm at work , my mind is focused and I don't often think of any of it , but when I'm home I can faulter. 

It feels a little sureal sometimes I have support from my family and friends and from you guys on this forum , your all kind and reassuring , just wanted to say Thank you xx

  • Hi Podperson,You may find that the level of pain post op is not as bad as you fear.After the first day I was able to manage on i.v paracetamol rather than have the morphine which made me sick.I was in less pain post op than pre op.It’s usual to feel extremely tired.Move around if you can as walking/shuffling will help to activate the bowels.When you get home eating little but often is best.Build up your walking distances gradually and listen to your body.Rest when you need to rest.It is a big operation and you will get aches and pains to begin with.I hope it all goes smoothly.Keep posting as we can help to support you through it.Let us know how you get on.Love Jane xx

  • Winkers is dead right. I had more pain before the op too. Naturally you are nervous, at this stage we all were. But one looks back afterwards and sees just how much better life is without the bladder that was such a nuisance. Once you recover physically from such a major operation you can cope with life much better I found. 

    I don't recall feeling much pain - of course I was taking whatever tablets the nurses thrust at me - not easy in my case as I can't swallow with water - but a good excuse for a biscuit or some chocolate - even in the middle of the night!. And I have no idea what was in my drip.  But by the time I was discharged I stopped taking even soluable paracetamol. 

    Take it a day at a time, rest as you need to, do the physio they tell you to do including proper walks as well as marching around the kitchen table. I used a stick, or later my walking poles, to help me feel balanced outside  and my son-in-law kept me company and bought me a coffee midway to celebrate my returning sstrength and we'd share a Danish pastry too. 

    Look forward ti the simple pleasures and try not to worry about pain.

    Love,

    Latestart x

  • I remember saying to the surgeon that the hideous bladder pain was gone and replaced by abdominal pain.I didn’t mind the abdominal pain because I knew that would go.I don’t miss my bladder at all.I had over 30 years of persistent pain with it.I just wish they had removed it before I got cancer.

  • Hi

    I have to be honest, I wasn't in any pain after the op, I was on a morphine drip for a few days. Out of bed the following morning and walking around(quite slowly). The main thing I found was not realising how fatigued I became, so it's important that you don't over do things and tire yourself out. I would suspect that after the op the heavy bleeding will cease, which will a relief.

    You won't know anything about the op, but walking around after is important to get your bowels working. Don't worry, the medical staff will tell you exactly what you need to do and how to do it, but don't be afraid to ask.

    Also, don't forget us while you're in hospital, we care.

    It doesn't matter where you go, there you are
  •   I had robotically assisted surgery last November. The pain after the Operation was not bad at all, and certainly far less than the pain before the operation induced by BCG and previous treatment.  Leo

  • I think surreal is a good description to use, of this leap into the semi unknown. As others have said, you should find there is less pain post op. Just be prepared to feel more weak & tired than you anticipate. Recovery can feel very slow, you will need patience. Plenty of rest, eat little & often & gradually increase the amount of walking - you'll get there. Hope all goes well.

  • Thank you all for your advice and support xx