Can i ask to change hospitals in order to have the cold cap treatment to avoid hair loss,if my hospital does not offer cold cap therapy ?

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Bladder Cancer  chemo treatment  may  causes hair loss 

  • Hi again  . Going by your other post, you have not had your TURBT yet. Chemo may not be one of the options for treatment. If it comes to chemo, then there are two different treatments. Intravesical is directly in to the bladder (Mitomycin). This does not affect hair. The other is intravenous, in to the veins. Usually Gem/Cis. This is not the type of chemo where you lose all your hair. Some people report hair thinning but very rarely loss, so you would not be offered the cold cap. I have never come across anyone in this group using a cold cap.

    I think you may be jumping the gun a bit. Your TURBT will remove any offending cells. This may be followed by a one off bladder wash with Mitomycin. This will not affect your hair. Biopsies will be taken and sent for analysis. The results of this will take a few weeks. You will be given a stage and grade and this determines the next step. If caught early, it is unlikely you would have intravenous chemo. Try and stay away from google as there is a lot of misinformation out there. Lots of experience here to answer any questions. Best wishes.

    Best wishes to All,   rily.

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  • I can't answer about changing hospitals. I guess if you really want to you could ask anyway. 

      However, treated at a major London teaching hospital, I had the sort of bladder cancer that required chemo (muscle-invasive). I asked if I would use a cold cap and was told that although my hair would probably thin I would not lose it all and so they didn't use the cold cap.

    And after the chemo finished it grew back just as thick. My advice is that it isn't  needed for the usual chemo (Gem/Cis). 

    Hope that helps (I'm female, by the way). I found the chemo bearable but not a walk in the park and focused on getting through it so I could have the bladder removal surgery.

    2 years later I'm fit and well  so far.

    Best wishes and good luck,

    Latestart

  • Hi Harbour,Welcome to the group.I hope you find it helpful.Once you have had your TURBT results you will know what treatment you need.Best wishes Jane 

  • Hi Harbour and welcome to this friendly,  supportive forum.

    The Macmillan Cancer Support site has information on each type of cancer regarding diagnosis and treatment. If you click on the link for Bladder Cancer it will take you through each scenario for low to high grade, and also muscle invasive and non-muscle invasive Bladder cancer. There are also booklets which you can download or order. I personally found all the information very useful and read an enormous amount. But once you have had your TURBT and you have the Pathology results your clinicians will be able to explain the best treatment path for you.

    If you have any questions, please don't hesitate to ask, the lovely folk on here are bound to have an answer for you.

    Try to enjoy Christmas and not worry about the TURBT, Bladder cancer is very treatable and there are lots of people on here who are a testament to that.

    Sending you hugs and positivity Sparkles️ 

    Merry Christmas,  Love Ade SantaChristmas tree xx

  • Thank you for information .much appreciated 

  • Thank you for your time on answering my question . Reading your words has helped me to calm my anxieties.