My husband has suffered for 30 years with kidney stones and then bladder stones. He has had numerous procedures over the years,last 5 years have been the worst. In and out of hospital,repeated infections, antibiotics,stents self catheterization for years, under a urologist for years. Then was lost in system due to COVID no follow up appointments. Fast forward to 2023 he was taking in to hospital with pain and collapsed on bathroom floor. He was very poorly then sepsis diagnosed. Had an app in Feb 2024 was apparently lost in system, he said things not great still pain,bleeding ect. Was giving a rapid response card with number to call if needed. From May he phoned that number numerous times and no one responded,he left a couple of voicemails and nothing. He went to local hospital walk in clinics 4 times with samples and was given antibiotics for infections. Forward again to August when he was again admitted to hospital for a severe infection,treated in hospital. Then October 6th had a scan app before his meeting with urologist was phoned next day to go immediately to hospital as left kidney was very swollen,in hospital for 5 days until treated further app to have a tube put in his kidney for urine to be collected in a bag plus a turp procedure performed. We were told that a bladder tumour was found and investigations needed. Tests,biopsies and scans later was told that needed a bladder and prostrate removal robotic operation. 3 weeks later last Friday was admitted at 7 am for the surgery at 9 am was told operation would be 7 hours long. Surgeon phoned me 3 hours later to say surgery was abandoned as tumour too big too invasive and aggressive. We were absolutely devastated, my husband was left in terrible pain spent 5 days in a surgical ward . Been home 2 days now and told that oncology looking at possible palliative chemo. We have heard nothing, we are so emotional and upset,we were sent home with a bag of drugs morphine ect. We don't even know size or grade of tumour,is chemo possible? It has been such a difficult and upsetting time and I feel abandoned in what happens next.
Hello Critter 1981 and welcome to the group, although sorry to hear what your husband has been though and that he has been let down by the system. You could try going through PALS at your hospital who may be able to find out any information on your husband's treatment. Best wishes.
