Hello

Aw your post came through at just such a perfect time. Thank you for your advice. I wish you all good things. I hope you are doing so well x

Hi Joyce,I was wondering how you are ? love Jane xx

Aw Jane. How thoughtful of you. To be honest I am not coping well.  I don’t even recognise the person I am just now. I have had the TURBT and am waiting for the appointment to say what happens next. Doctor has already said the TURBT involved deep cuts. So I’m very worried. Thank you for asking. I didn’t feel able to come on again and say how scared I am ! How are things with you Jane? X

I hope you will feel able to express your worries on here because we have all experienced anxieties at the start.There are all the investigations and coming to terms with the diagnosis.It can feel so overwhelming in the beginning but people do feel better able to cope once treatment starts.I have seen that time and time again on here.Sending a virtual hug and please stick with us if you can.This group is here for support.I’m not so well,thanks for asking.Love Jane xx

Hi JoyceF

I think everyone on here understands how anxious and worried you are. The waiting for results is very hard and the brain goes into overdrive and tries to think only of the worst possible scenario (mine did!!). When the surgeons perform the TURBT they do try to get underneath any tumours and get some muscle tissue in the samples to send to Histology for the Pathologist to examine. They need muscle tissue to determine whether the cancer is muscle invasive or not. So that may be why your doctor said that you had deep wounds to the bladder. You may find that you have to have a second TURBT to confirm the results of the first. The Pathology results can take 4 to 6 weeks to get reported. 

When was your TURBT Joyce?  Let's hope that you don't have to wait too much longer to get some results back. In the meantime you can phone the Macmillan helpline for a chat and some extra support and we are all here to support you too.

Sending you hugs and positivity

Love Ade xx 

Thank you Ade. The TURBT was last Monday so waiting to hear what’s next. The kindness and support from people on here is  so appreciated. I sometimes feel so panicky. And I seem to have lost my way a bit. So thank you for posting. Love Joyce x

Hi Joyce,I’m sure you will find your way again.Things are bound to be different after a diagnosis but you can adapt and feel more settled.You will get there.Love Jane xx

Sending love to you xx