Hi all, new to the group and wanted to introduce myself. I'm a 47 yr old male recently diagnosed with muscle invasive bladder cancer , . Had cystoscope on 26/8 after 3 weeks of being treated as uti , where they discovered a tumour in my bladder was told I'd be taken in to have it removed and sent to lab for biopsy , on 28/8 I received a call from urology with a surgery date (cancellation) for the following week 4/9 inbetween these dates I had pre op ,consent clinic and ct scan . Operation went well but was informed by surgeon he was 99%sure tumour was cancerous but would have to wait for results clinic , I asked what ct showed and he said he'd not seen the results yet . 3 weeks after op received call to meet specialist nurse who confirmed it was cancer , and advised that radical cystectomy would be her recommendation as radiotherapy in her opinion wasn't as successful, however again would have to wait until mdt meet up to discuss my condition when they had all results to hand , as ct results were still not reported yet , now into week 4 post op and still in limbo as no one has seen ct results , I just wish they'd hurry up and have all results, to allow me to move forward with treatment etc. As you can all imagine it has been a very stressful few weeks for my family and I, lots of tears and why me? I'm also not overly keen on the radical cystectomy route as im terrified of potential risks and after effects of surgery ,though my family are encouraging me to have it , currently signed off work from GP, though trying to have him allow me to return as need to work or mortgage and bills go unpaid and can't/won't put my wife and daughter through any more. Anyway that's my long winded introduction to the group ,and probably the first of many .
Hi Cloelanber and a welcome from me. Early days for you yet and there should be some more tests and scans in the pipeline, with probably a follow up TURBT to double check. When all results are in they will come up with the most appropriate plan. My oncologist would disagree with your nurse by saying there is no evidence to show that neither RC or RT is better than the other in cases of MIBC. It all depends on individual circumstances. There is experience of both routes here and always someone able to answer any questions. In my case of MIBC, I went the chemoradiotherapy route ten years ago and can help if you go that way. Waiting for results and appointments are always anxious times, but we get there in the end. Lots of support here, so stay with us going forward. Best wishes.
