Just beginning the bladder cancer journey

Good afternoon Carol and welcome to this friendly group. I’m sorry to read of your experience so far.  As for results of the biopsy you can expect a wait of 2/3 weeks. Your surgeon or urology department will contact you . Hopefully the feeling of shock will lessen as you find out more from your hospital but the initial shock is something we’ve all felt. With best wishes, John.

Bovey1 Hi carol, and a welcome from me. The early days of uncertainty and not knowing can be the worst. Things get slightly easier when you know what you are dealing with. The main thing to remember is BC can be treated successfully and many of us here can tell the tale.  As Wally says, it usually takes a few weeks for results depending on the availability of Graham's consultant. Don't be alarmed if he has to go for a follow up TURBT and some scans. All par for the course. In the meantime, makes sure he keeps drinking plenty of water to flush things out and prevent blockages. Lots of experience here so feel free to ask anything. Best wishes.

Thank you. That helps a lot having some idea what’s to happen.

Thank you. That helps

Hi Carol,Welcome to our friendly group.I hope you will find it helpful moving forward.I’m sorry to hear your husband has not had a good experience so far.These early days are difficult with the waiting and uncertainty but you are with us now and we will all help to support you both.Best wishes Jane 

I wonder, how old is your husband? I kinda feel like I had a sort of worse case scenario with losing my bladder but you know what? I never have to get up in the night to pee. If I went out for a meal, or a flight, I no longer need to worry about having liquids. There are actually advantages of losing a bladder ;-)

I was peeing with such frequency that it.. well it was stupid. But that was not due to cancer though, so by all means prepare for the worst but it may not be as bad as you imagine.

The one thing I have learnt so far on my very short journey is generally no news from the hospital/consultants is usually a good sign, they will only contact you when there is something to discuss or arrange appointments.

I'm sorry to hear of your and your husbands journey and his story.

Certainly it does tend to be a whirlwind to start with and that is entirely understandable.

I wish you both the very best.

Simon

Any tumour in the bladder tends to bleed profusely which can be very alarming to experience. (I speak from experience) If that is what your husband is encountering, you and he will find out shortly. Most of these are treatable so remain hopeful. Such a diagnosis can be shocking and will take time to work through. There are very good people here for information and support. 

Hi Carol

It all happened very quickly for me after  my cystoscopy when tumour and abnormal cells were found in my bladder.

TURBT was done appx 4 weeks later and bladder, prostate and lymph nodes 6 weeks after that with Christmas in between.

From my experience it seems that if it’s serious it all happens quickly.

9 months on I’m fine AND there’s no more getting up in the night. Just connect up to night bag and sleep. I’m 78 and recovered with no major problems. Plenty of fluids and 5 a day fruit and veg essential though.

Hi Stapled,It’s good to hear you have recovered well.The night bag is a plus.I was up every few minutes each night before the cystectomy and exhausted.Best wishes Jane