T4n muscle invasive bladder cancer

I’m glad your nurse was able to help so promptly-I know what it’s like to fear running out of bags. Never be afraid to ring up the nurses if you need any help. 

Sarah xx

All I would add is that your partner probably does understand the gravity of the situation. I did the same, was upbeat, not bothered. At least, around my loved ones. I can't speak for your situation obviously, but if he is anything like me he is probably trying to make you feel better. It may not be working! But I did the same thing. (and it didn't work)

thank you so much MagicMirror, i totally think you are correct. I got the gist that was true. We are due to meet the big consultant next week, for results and the way forward and he let something slip, but i didn't respond but was glad we are now on the same page. thus we are  just enjoying the best of days for now, thank you again, love and hugs, Yxx

Thank you sarah, yes he seems to get put through even quicker than i was, funny though how the box has 50+, when only expecting 20 at the most. xxx

I found out about my situation from a doctor dealing with some other issue. He is an older doctor that says what he means. He said right out that I'd be losing my bladder and getting a bag. But I appreciated the honesty. My cancer doctor took an hour to say the the exact same thing without ever looking at me or addressing me directly, he only talked to my partner, A bit insulting but he seemed surprised when we were not shocked. 

All I'm trying to say is that our experiences may be different, and maybe I've gone on about this too much lately, but always post here... no matter what the challenges are because you will always find people who understand. It helped me soooo much. 

I honestly wish that my partner reached out for support too, because everyone involved needs the same level of support.  

Hi thank you, i do undestand where you are coming from. And having been through a cancer myself, i know to ask questions and research and get onto the forums, like i've done here for my partner. he's not techie but greatful i'm often prepared for meets with new doctors and consultants, ie next week we are to have  a meet with the urology consultant about the way forward, now my partner has his bag,, cannot continue with the bladder out due to his age, is having palliative care, and likely to have some more chemotherapy, already having had radiotherapy when the cancer was in his urethra which was taken out along with a kidney. Latest CT and Blood tests will be discussed. [oh and he's had BCG etc].

He' and even the consultants who'se computer went down is glad of the copious notes i take, a there is so much which is missed, if not recorded or reclarified. perhaps a tip to others meeting their consultant and oncologists Never be afraid to ask, or even ask for it to be put a different way.

Next week we plan to attend our local Maggies before and after the said meeting.  Manchester Maggies have wonderful gardens in bloom at the moment. as we support each other as well, thank you, yavapi love and hugs xxx

Keep strong, in touch