Good Evening all
I started having blood in my Urine Last year went to the doctors on four ocassions every time it happened I went you’ve got a UTI you’ve got urethritis and so on bloods done urine cytology done all came back normal and even doctors comments back that up with comment on the NHS app
finally 29th of January seen a doctor that just went 2ww referral straightaway gone on long enough went for a Cystocopy 11th of Feb and things went from 0-100 that day have you brought someone with you why ? You’ve found something haven’t you Yes was the reply get yourself sorted and we will discuss this in the assessment room in 5 minutes grab your wife.
We went in where he proceeded to tell me he had found a 2cm Papillary tumour Non invasive from what he could see and said it does like we’ve found this early ( not as early as I’d of liked them to find it and not through lack of trying 4 visits Remember I’m sure some of you will of experienced similar with your GP in the early days not well up on the BC it would seem are they or maybe it’s just my GP Practice
So 3 days later from the 11th of Feb in for CT Urogram then the week of the 28 th Feb Pre op and TURBT 1st March never been put to sleep before ever so that was really bothering me more than anything came through it fine was over in the blink of a eye literally you all know what I mean woke up felt fine had a catheter in for 5 days after I’ve decided I hate catheters I’m over 6 ft and really struggled with it but it was there to do a job that I’m now just waiting for pathology to see if I’m having any more treatment or whether it’s straight to surveillance or what still early days I know but I’ll hold my nerve and go wiith whatever they say is best for me I’m a male of 45 years old.
Good Evening Wel1979 . You are in good company here. Your story will be familiar to many. The positive is that things have been identified and you have had your TURBT. Always an anxious time waiting for results. The not knowing and uncertainty is something we understand. Lots of support here as you go forward. Best wishes.
Thanks Wel1979 . 10 years ago when I was diagnosed with MIBC I thought my world was over. The wonderful people on here guided me through some dark days and I will be eternally grateful to them. Once I got on the treatment path I went with the flow and took things one step at a time. So far so good. Lots of varying experiences here so always someone with an answer or just someone to chat to. Best wishes.
