Hello All

Hi,I am cancer free after bladder removal 4 yrs ago.I had 34 years of Interstital cystitis and 14 yrs of pre cancerous bladder changes so my situation was different to others on here.It is understandable that you are feeling wobbly.I’m sure you will feel better once your results are back and you know what you are dealing with.The period of being in limbo is what most find the hardest,waiting for results and tests is never easy.Everyone here will support you though so ask any questions.There is usually someone with the relevant experience to answer.Love Jane 

Hi MagicStars . We know how waiting for results can be a bit stressful. As Jane says, doctors can usually tell by looking but would rarely commit to saying anything until results are in. I hope all goes well. Best wishes.

That must have been such a shock Angela.I am grateful to my uro for warning me it was cancer without committing himself to the word before the results were back.I was already sure it would be cancer as I looked so ill.I hope the mindfulness and meditation are helping.I shall probably look into mindfulness when I move.Love Jane xx

Hi Jane, thanks for your reply. I wasnt sure I was being helpful by posting my experience , so in a fit of doubt i deleted it. !! Yes the mindfulness has really helped me when all the fear and what ifs about the future start. It brings me back to today and living in the present. I use an app on my phone and practice every day. 
you have been through so much Jane , you are an inspiration . You always have a caring and supportive message to give others , and are part of why i use this forum. Thanks so much .

much love Angela xx

Thanks Angela,I do care about everyone on here and have had a lot of support.I’m so pleased you are finding the mindfulness app helpful.They run classes where I live and I wanted to join but then mum died.xx

Hi magicstars this is my first post on the bladder cancer forum too, diagnosed with bladder cancer in march but do not know much about it, only i nave not had a good night sleep for 15 months, peeing issues, may seem an odd thing to say, but i am on locally advanced prostate, and living with terminal cancer  forums. i also have serious non cancer problems, anyway i can guess my bladder  cancer problem is quite minor compared to a lot of the issues you guys on here have to live with, i have tried everything to control my incontinence "I do have 5 cancerous organs", with less than no luck, i am 6 months post radiotherapy so new treatments are available PTNS SANS and something where adjustable balloons are placed around urethra and controlled by a port in scrotum. I would be grateful for any advice on these or other suggestions, thank you. PS my heart and anaesthetic do not get on

Hi eddiel and welcome to this group and I see you are active in other groups. Sorry to hear you have bladder cancer on top of everything else. Incontinence is a common problem but we have not come across PTNS here as far as I know. It would be interesting to know how you go. How are you going with the BC treatment. Best wishes.

Hi rily thankf for replying, PTNS percutaneous posterior nerve stimulation, needles are injected into you ankles and electric pulses sent up your legs/nerves to stimulate the necessary parts.My bladder cancer along with bowel and anal gland was discovered  in a pre radiotherapy scan a week before treatment in april, having shown no sign of it in a scan 8 weeks earlier. my radiotherapy was originally for prostate and lymph, As all the tumours were quite localised they upped the treatment and widened the focus. I am not expecting miracles  and i do not know how radiotherapy went other than my PSA is 0.08,wfhich i know is good. i have a meeting with my urologist PCN and an incontience specialist friday so any suggestions/advice would be great,