Bladder cancer

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Hello everyone… found out on the 31st August I had bladder cancer, this was a shock as never expected this, on sept. 6th had two tumours removed, had results on Monday, high grade recurring tumours..  waiting to start BCG vaccines….  Still feels like its not really happening to me, as still feel well…. Accept for a very weak bladder since the op… cant go anywhere if theres not a toilet handy… wondering will this  effect the BCG vaccines ?  Know very little about all this, and dont   want to read too much it…. Taking each day as it comes at the moment 

  • This was my experience exactly around two weeks before you. I am starting BCG this coming Monday. Check with your urologist regarding the bladder. 

  • Hi  and welcome to this supportive group. Good to know you have got to the stage of beginning follow up treatment. Not had BCG myself, but have been here long enough to know that you cannot predict how you will react. Some people sail through it while few have nasty side effects. In the main though most people have mild reactions. The nurses will let you know how a weak bladder may be affected. I read your earlier post in New to Community where you say you have not head of bladder cancer before. You are not alone as few people have, even though BC is always in the top ten of dozens of cancer types but gets little publicity. I hope all goes well with your treatment and I am sure others will be along to share personal experiences. Best wishes.

    Best wishes to All,   rily.

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  • CDN, hope all goes well with your BCG.  Im starting mine on the 8th nov… will give my urologist  a ring regarding  my bladder problems, just concerned as dont want any reason to delay my treatment .Take care 

  • Hi FR61,Welcome to this friendly group.I hope you will find it helpful and supportive,Best wishes for your BCG treatment.Jane 

  • Hi CDN,Good luck with your treatment.Jane 

  • Thankyou, keen to get treatment started…a waiting game at  the minute, but going back to work this wednesday, just a few hours a day,  fingers crossed my bladder holds Blush

    Hope you all have the best weekend you can 

  • Hi FR61

    I've now had 15 BCG treatments and although everybody is different, for me it hasn't been too bad.

    With the first one you'll be asked to remain in the hospital for the two hours you need to hold the BCG in your bladder to see if everything's ok but subsequently you can go home and release there, providing you've done your two hours.

    I've found the insertion of the catheter uncomfortable but never painful and you don't notice the BCG going in. I do have some side effects each time, needing to urinate often, stinging when I do go, passing blood and debris and my bowels are uncomfortable. All this, apart from the stinging which lasts a couple of days, is done and dusted within 6 hours and I'm fit enough to go running the following morning.

    Good luck with your treatment and if I can help in any way get in touch.

    Pete

  • Halfhorse, you dont make BCG sound too bad at all, so thankyou  for that BlushThe side effects you experienced after the BCG, sounds  just the same as what I had after my op. And  all the time I  had my catheter in ( For ten days ) the running to the loo and constant stingingBlush is just about easing off  now…. It took a while Blush but starting to feel normal again, so  will make   the most of the next couple of weeks before I start my first round of BCG on the 8th.. Take care