I just wanted to say hi, I've been reading through the forum posts for most of the day and you seem like a lovely bunch.
My partner had a cystoscopy and ultrasound 15th September after having blood in his urine.
He's had blood in his urine for a number of years but having previously been hospitalised for kidney stones, gp always assumed it was the stones again and he just rode it out. This time was different as there was no pain or feeling of blockage and the blood pattern was different so he was seen by the gp the same day and referred to urology.
A letter we recently recieved said they found a "2cm papillary tumour on stalk and other smaller papillary tumours around it" I'm not even sure what that means.
He's since had a ct scan which showed no indication of it having spread anywhere in his pelvic or abdominal areas.
He's currently waiting for a TURBT procedure, he had his pre op 25th September and pre op bloods 28th September.
The waiting is so difficult, every day that passes you can't help but worry what's going on inside there especially when, like yesterday, there's a sudden increase in the amount of blood visible. I now know from reading here that it's quite normal to see more blood at times.
From what his nurse has said his outlook should be positive being so young (under 40) and the type of tumour usually being low grade but surely that's just guess work at this point and we know someone even younger who's outcome unfortunately wasn't positive, only earlier this year which makes it even scarier.
I also can't help wondering was the blood all those other times his kidney stones as had been assumed at the time. I suppose your mind wanders everywhere at a time like this.
Just a waiting game for now. I spoke to the hospital today and they're still waiting for his bloods to be reviewed.
Hi Indigo11 and welcome to this friendly and supportive group, although sorry to hear your partner may have bladder cancer. It is not uncommon for bc to be overlooked. The early days of uncertainty and not knowing can be the worst. Firstly, be aware that bc can be treated successfully. The waiting can be an anxious time and we are aware of how you are feeling. A TURBT procedure is a fairly straightforward operation in the great scheme of things. Usually done in day surgery but prepare for an overnight .The offending cells will be scraped away and biopsies taken. The results will determine the next step. Lots of experience here so feel free to ask any questions. Best wishes.
