Hello new here .

Hello Jayne79 and welcome to this friendly and supportive group although sorry you find yourself here. Firstly, be aware that bladder cancer can be treated successfully. It is not uncommon for ladies in particular to be diagnosed late. We see it often here. The positive is you are now in the system. The next step is usually a flexible cystoscopy to see inside your bladder with a camera. A simple and painless procedure, although maybe a bit uncomfortable. However, if they have already identified something you may go straight to a TURBT procedure (trans urethral resection of bladder tumour) . (It sounds worse than it is). Usually done in day surgery. They will scrape any offending cells away and take biopsies. The biopsies will confirm if cancer or not and will determine a treatment plan. i hope I have not overloaded you with too much information. Lots of experience here so please feel free to ask anything or just come to chat to others who understand. Best wishes.

Hiya aww thankyou  for the warm welcome. Yes I had a 6cm tumor. Embedded in the lining of my bladder.  Because of how aggressive it is. I am unfortunately having to have a bladder removal, my ovaries and my womb. . 

Hi similar to me. I had my op at the end of January this year. Radical cystectomy and a reconstruction of a neo bladder. I’m happy to help with any questions. Many on here have been exactly where you are now and not knowing what’s going to happen. You’ve come to the right place for advice as we are all different and had different experiences. Sending hugs as I know exactly how you feel xx

Hi Jayne79,Welcome to this friendly group.It must all seem very scary at the moment but there is plenty of advice and support on here.I had my bladder removed in 2019.I’m happy to help with any questions too.Love Jane x

Aww thankyou much appreciated 

Aww I am. So. Petrified . Dr said its going to be 6 hour surgery .  Definite  going to be life changing for me .. I am going to be ending up with a stoma on.for the.rest of my life ..

1. Aww thankyou Jane.  Much appreciated.. its just knowing its going to be lifechanging . 

Hi Jayne79 

Yes, it’s life changing but I prefer to think of my stomas as life saving. Lots of us in the group can help support you with our experiences of having a urostomy. 

Sarah xx

• Hiya Sarah,  awww much appreciated  for your help , with living with a stoma..I totally understand, and appreciate,  on what your saying,  living with a stoma. I.know I would feel.self conscience about  my body . . I am.just going through a bad time at the moment. With me been diagnosed with this and.my dad receiving palliative care. For a brain tumor.. This year cannot get any worse .

I’m so sorry to read what you’re dealing with Jayne79 .That must be extra hard for you. This group is very helpful and you’ll get lots of support here. I would say the thought of a stoma is worse than the reality of living with it, and I actually got used to it very quickly. It is a lot to come to terms with when you’re initially faced with it though.

Sarah xx